2013 ANNUAL REPORT ONLY ST. JUDE THE MISSION OF ST. JUDE CHILDREN’S ONLY ST. JUDE RESEARCH HOSPITAL® IS TO FIND CURES 2013 ANNUAL REPORT FOR CHILDREN WITH CANCER AND OTHER DEADLY DISEASES THROUGH RESEARCH AND ONLY ST. JUDE TREATMENT. ST. JUDE IS DEDICATED TO THE A LETTER OF THANKS BELIEF OF OUR FOUNDER THAT “NO CHILD 3 5 PATIENT CARE 6 SCIENCE TO SURVIVAL 16 ALSAC IS THE FUNDRAISING AND AWARENESS ACADEMIC RESEARCH 22 ORGANIZATION FOR ST. JUDE. ALSAC’S INTERNATIONAL LEADERSHIP 28 SOLE MISSION IS TO RAISE THE FUNDS AND FUNDRAISING & AWARENESS 36 LEADERSHIP & SERVICE 44 SHOULD DIE IN THE DAWN OF LIFE.” AWARENESS NECESSARY TO OPERATE AND MAINTAIN ST. JUDE. YOU CAN HELP MEGAN AT AGE 11 ACUTE LYMPHOBLASTIC LEUKEMIA 56 ONLY ST. JUDE Brennan needed four bone marrow transplants. Six-week-old Apollos had a massive brain tumor. Alexis needed an entirely new type of treatment to fight her cancer. Their families turned to St. Jude Children’s Research Hospital. At St. Jude they found a hospital unlike any other, where cutting-edge research into childhood cancer and other deadly diseases is brought together with extraordinary patient care and unparalleled family support. We are turning laboratory breakthroughs into lifesaving treatments for children—every day—and never send a bill to patient families. THERE ARE GREAT RESEARCH INSTITUTIONS, GREAT HOSPITALS AND GREAT CHARITIES. WE ARE ALL THREE. WE ARE FINDING CURES AND SAVING CHILDREN. APOLLOS AT AGE 1 GLIOBLASTOMA MULTIFORME ONLY ST. JUDE 2013 ANNUAL REPORT | Page 2 You can help. Find out how at stjude.org. NICHOLE AT AGE 1 ACUTE MYELOID LEUKEMIA Dear Friends, When our father, Danny Thomas, opened St. Jude Children’s Research Hospital more than 50 years ago, little did he dream that his desire to help desperately ill children would touch the lives of so many people. In communities all across this country—indeed, all around the world—St. Jude is a champion for families who only want their beloved children to be well, and to put to an end, once and for all, the threat that childhood cancer and other diseases pose to their children’s lives. That’s because, at St. Jude, doctors and scientists are making breakthroughs every day that benefit children. During just this past year, because of our genome project, they shed new light on our understanding of deadly childhood diseases and created new ways to treat them. Then, as always, they shared that knowledge so doctors and scientists everywhere can use that information to save children. At the same time, they continued working hard to make sure every child can enjoy the best quality of life possible—and a future full of hope and promise. None of this would be possible without you. We are so very thankful for your steadfast support and incredible generosity, and for your passion for helping us reach the day our father dreamed of—the day when no child will die in the dawn of life. God bless the children, Marlo, Terre and Tony Thomas ONLY ST. JUDE 2013 ANNUAL REPORT | Page 4 BROOKLYNN AT AGE 2 ACUTE LYMPHOBLASTIC LEUKEMIA PATIENT CARE ONLY ST. JUDE 2013 ANNUAL REPORT | Page 6 MADISYN AT AGE 1 SEVERE COMBINED IMMUNODEFICIENCY (SCID) PATIENT CARE CHILD-CENTERED, FAMILY-FOCUSED At St. Jude, providing the best in patient care means treating the whole child, not just a disease. It means not only finding the best treatment plan for each child, but also working to discover why he or she got sick. And it means looking at the long-term effects of treatment and taking every possible precaution and providing every possible service to ensure each patient enjoys the best quality of life. And families never receive a bill from St. Jude—not for treatment and not even for transportation to the hospital or food and housing once they arrive. THANKS TO THE GENEROSITY OF DONORS, NO FAMILY EVER PAYS ST. JUDE FOR ANYTHING. ONLY ST. JUDE 2013 ANNUAL REPORT | Page 8 TREATMENTS INVENTED AT ST. JUDE HAVE HELPED PUSH THE OVERALL CHILDHOOD CANCER SURVIVAL RATE FROM & AROUND THE WORLD 1962 TO TODAY ST. JUDE TREATS PATIENTS FROM ALL 50 STATES 20 % % 80 % % WE ARE WORKING TO DRIVE THE OVERALL SURVIVAL RATE TO 90% IN THE NEXT DECADE. WE WON’T STOP UNTIL NO CHILD DIES FROM CANCER. ONLY ST. JUDE 2013 ANNUAL REPORT | Page 10 BRENNAN AT AGE 7 ACUTE MYELOID LEUKEMIA In 2009, at the tender age of 7, Brennan was diagnosed with a rare and deadly subtype of acute myeloid leukemia. Three bone marrow transplants—one at a local hospital and two at St. Jude— failed to stop the aggressive cancer, and in 2011, his parents decided to pursue Brennan’s only remaining hope—a risky fourth transplant with cells harvested from his mother’s marrow. ONLY ST. JUDE WOULD HAVE ATTEMPTED A FOURTH TRANSPLANT. THE TRANSPLANT SAVED BRENNAN’S LIFE, AND WHAT ST. JUDE HAS LEARNED FROM BRENNAN WILL HELP OTHER CHILDREN. ONLY ST. JUDE 2013 ANNUAL REPORT | Page 12 “BECAUSE THEY WERE WILLING TO TAKE A RISK ON MY SON, THERE ARE OTHER CHILDREN WHO ARE ALIVE NOW.” —TURNER BRENNAN’S FATHER BUILDING LEGACIES TELLING UNIQUE STORIES Writing music, creating a documentary or stretching a voice to reach the high notes—these are just some of the ways our teen patients are encouraged to express their feelings and fears, and share their special individuality. The St. Jude Legacy Bead Program was designed specifically to address the challenges faced by our patients and provide a way for them to visualize their experiences at St. Jude. Patients receive a bead for every procedure and treatment they undergo, stringing them together into a unique story that can be shared with family and friends. MAE AT AGE 6 WILMS TUMOR DANCING IN THE HALLS St. Jude is a place of joy, where children dance to the sounds of visiting musical groups, trick or treat in the hallways every Halloween, or pelt their doctors with Silly String in a summer “war” on the campus. At St. Jude, we let kids be kids. LEARNING AND GROWING TREATING THE WHOLE CHILD CONTINUING CARE Part of childhood’s normal routine is going to school, and the St. Jude School Program Presented by Target gives patients a way to focus on the future and keep up with schoolwork. St. Jude teachers work with patients’ home schools to help them stay the course with their classmates, whether that’s learning to read or preparing for college entrance exams. At St. Jude, our care doesn’t end when treatment is done. Our After Completion of Therapy clinic is the largest long-term follow-up clinic for childhood cancer patients in the U.S.— and we do this at no cost to patients. The clinic helps patients stay healthy after active treatment ends, and has served as a prototype for other follow-up programs. CELEBRATING MILESTONES COPING WITH TREATMENT SUPPORTING SURVIVORS A diagnosis of cancer can totally disrupt the lives of patients and their families. But that shouldn’t put a halt to celebrating life’s moments of joy and accomplishment—patients should not have to miss their high school prom or their kindergarten graduation. At St. Jude, they don’t have to. Being sick can mean being scared—of needles and medical tests and treatment. The Child Life specialists at St. Jude help children understand—at their own age levels— what to expect at the hospital, helping to relieve their stress and anxiety. St. Jude is a pioneer in studying the effects of treatment in adults who survived childhood cancer. Through our St. Jude LIFE study, we’re monitoring more than 2,600 people who were treated at St. Jude. We’re finding out how their treatment is affecting their health as adults, looking for ways to lessen long-term side effects, and helping survivors understand their health risks. ONLY ST. JUDE 2013 ANNUAL REPORT | Page 14 BAILEY AT AGE 6 WILMS TUMOR SCIENCE TO SURVIVAL ONLY ST. JUDE 2013 ANNUAL REPORT | Page 16 SCIENCE TO SURVIVAL ON THE LEADING EDGE In February 2013, the project was recognized by TIME magazine as one of the top 100 new scientific discoveries. Everyone at St. Jude is committed to doing everything possible to end the loss of life caused by childhood cancer and other deadly diseases. WE ARE AT THE FOREFRONT IN UNDERSTANDING THE GENETICS OF CHILDHOOD CANCER AND IN DEVELOPING AND DELIVERING THE MOST ADVANCED THERAPIES, ALL FOR ONE GOAL: TO SAVE LIVES. The pediatric cancer genome project continues to generate new scientific breakthroughs, as St. Jude focuses on an area of genomic science that few other organizations are pursuing: finding mutations in the regulatory regions of genes as well as other mechanisms that turn genes on and off. In FY12 we announced that the St. Jude Children’s Research Hospital-Washington University Pediatric Cancer Genome Project completed sequencing of the cancerous and healthy genomes of 700 childhood cancer patients. When the project began three years earlier, not one entire childhood cancer genome had been sequenced. ONLY ST. JUDE 2013 ANNUAL REPORT | Page 18 In 2014, St. Jude plans to begin sequencing the genome of every St. Jude cancer patient in an effort to discover the best ways to tailor each child’s treatment and achieve better outcomes. KHAMONI AT AGE 4 ACUTE LYMPHOBLASTIC LEUKEMIA IN 2015, ST. JUDE WILL BEGIN TREATING PATIENTS IN THE NATION’S FIRST PROTON THERAPY CENTER DEDICATED SOLELY TO CHILDREN. ONLY ST. JUDE 2013 ANNUAL REPORT | Page 20 Proton therapy is more powerful in destroying cancer, because it can be used to deliver a higher dose of radiation to the tumor. Proton therapy reduces harmful side effects, because the radiation does not continue beyond the tumor. This spares normal tissue and vital organs from exposure, which is critical in a developing child. ACADEMIC RESEARCH ONLY ST. JUDE 2013 ANNUAL REPORT | Page 22 ACADEMIC RESEARCH TURNING LABORATORY BREAKTHROUGHS INTO LIFESAVING TREATMENTS CHILDHOOD CANCER SURVIVORS HAVE UNDIAGNOSED DISEASE AS ADULTS MAE AT AGE 6 WILMS TUMOR A St. Jude study provided the most complete picture yet of adult survivors of childhood cancer and their health risks, underscoring the need for lifelong medical follow-up. St. Jude found that childhood cancer survivors experience a significant amount of undiagnosed, serious disease through their adult years. The Journal of the American Medical Association | June 2013 St. Jude is the epicenter for the latest innovations in research and treatment of childhood cancer and other deadly diseases, sharing our results in 800 articles published in FY13. OUR DOCTORS AND SCIENTISTS ARE CHANGING THE WAY THE WORLD UNDERSTANDS CANCER AND OTHER DEADLY CHILDHOOD DISEASES, AND ULTIMATELY, HOW CHILDREN EVERYWHERE ARE TREATED FOR THESE DISEASES— AND CURED. For children facing the fight of their lives, the research breakthroughs made only at St. Jude offer hope for long and healthy lives. For more information about the medical and scientific breakthroughs at St. Jude, please see the St. Jude Scientific Report at stjude.org/stjudepublications. NEW MUTATIONS TO BLAME FOR BRAIN TUMOR SUBTYPE The St. Jude Children’s Research Hospital-Washington University Pediatric Cancer Genome Project announced findings that could lead to better treatments for children diagnosed with low-grade glioma, the most common childhood tumor of the brain and spinal cord. The research identifies most of the genetic mistakes that lead to these tumors. Nature Genetics | April 2013 INHERITED GENETIC VARIATIONS IMPACT LEUKEMIA RISK ABNORMAL GENE LAUNCHES RARE LEUKEMIA EXISTING DRUGS OFFER NEW TREATMENT OPTIONS A study led by St. Jude scientists found that children who inherit certain variations of four specific genes have a much higher risk of developing acute lymphoblastic leukemia (ALL), the most common childhood cancer. The report offers new insight into higher ALL rates among Hispanic children. The St. Jude Children’s Research Hospital-Washington University Pediatric Cancer Genome Project announced a discovery that provides insight into the causes of acute megakaryoblastic leukemia, which has very low long-term survival rates. The research findings could pave the way for better testing and treatment plans for children fighting this cancer. A new study led by St. Jude identified genetic changes in a subtype of acute lymphoblastic leukemia that could lead to improved treatments for children with that disease. The study shows some patients might benefit from existing targeted therapies. Journal of the National Cancer Institute | March 2013 ONLY ST. JUDE 2013 ANNUAL REPORT | Page 24 Cancer Cell | November 2012 Cancer Cell | August 2013 1962 TODAY 10 % 83 % % % 75 % 95 % % % 10 % 75 % % % 50 % 95 % % % 4 % 94 % % % 20 % 70 % % % MEDULLOBLASTOMA** RETINOBLASTOMA NEUROBL ASTOMA HODGKIN LYMPHOMA ACUTE LYMPHOBLASTIC LEUKEMIA*** OSTEOSARCOMA ONLY ST. JUDE 2013 ANNUAL REPORT | Page 26 A tumor that arises in the brain A malignant tumor of the retina The most common tumor in infants younger than 1 year of age and a common solid tumor of childhood A cancer characterized by progressive enlargement of affected lymph nodes and sometimes spreads to the spleen, liver, bone marrow, bones or lungs The most common form of childhood cancer affecting lymphocytes, a type of white blood cell The most common type of bone cancer in children and adolescents, occurring most often in the bones on either side of the knee and in the upper arm *Based on national averages from 2001—2007 THANKS IN PART TO WORK AT ST. JUDE ***Reflects survival rate at St. Jude, the highest worldwide for ALL DESPITE THIS PROGRESS, CANCER REMAINS THE LEADING CAUSE OF DEATH BY DISEASE IN CHILDREN OVER THE AGE OF 1 IN THE U.S. AND THE NEED TO FIND BETTER TREATMENTS REMAINS CRITICAL. THE DOCTORS AND SCIENTISTS AT ST. JUDE ARE COMMITTED TO FINDING THOSE CURES. **Reflects survival rate at St. Jude, standard risk and high risk, the highest among national cooperative groups for medulloblastoma 5-YEAR CANCER SURVIVAL RATES* CARRIE-LYNN AT AGE 13 ACUTE MYELOID LEUKEMIA BARBADOS INTERNATIONAL LEADERSHIP ONLY ST. JUDE 2013 ANNUAL REPORT | Page 28 INTERNATIONAL LEADERSHIP SAVING CHILDREN EVERYWHERE The mission of St. Jude is to find cures and save children—and that mission has no boundaries. ST. JUDE FREELY SHARES ITS BREAKTHROUGHS, SO ONE CHILD SAVED AT ST. JUDE MEANS DOCTORS AND SCIENTISTS AROUND THE WORLD CAN USE THAT KNOWLEDGE TO SAVE THOUSANDS MORE CHILDREN. St. Jude doesn’t stop there. Through its International Outreach Program and an innovative website, cure4kids.org, St. Jude reaches out to health care professionals across the globe. St. Jude pioneered a cooperative, partnership approach that pairs St. Jude leaders with local community leaders and health care providers in developing countries—sharing knowledge and expertise that can help improve diagnosis and treatment. CHRISTOPHER AT AGE 11 ACUTE LYMPHOBLASTIC LEUKEMIA PUERTO RICO ONLY ST. JUDE 2013 ANNUAL REPORT | Page 30 In June 2013, the inaugural St. Jude International Forum was held in Memphis, bringing together the foundations that support St. Jude International Outreach Program sites to share experiences and ideas related to patient care, fundraising and awareness. ONLY ST. JUDE 2013 ANNUAL REPORT | Page 32 IN 2014, ST. JUDE WILL OPEN A STATE-OF-THE-ART GLOBAL EDUCATION AND COLLABORATION CENTER THAT WILL BRING TOGETHER DOCTORS AND SCIENTISTS FROM AROUND THE WORLD TO TEACH, COLLABORATE AND LEARN FROM EACH OTHER. Learn more about the St. Jude International Outreach Program at stjude.org/international. COMMUNITIES BUT OUR DISCOVERIES ARE. ONLY ST. JUDE 2013 ANNUAL REPORT | Page 34 SITES MAY NOT BE IN YOUR 20 OUR LABORATORIES PARTNER IN 37,000 HEALTH CARE PROFESSIONALS FROM 14 COUNTRIES USED BY MORE THAN 187 COUNTRIES CURE4KIDS.ORG WITH MORE THAN 2,200 SEMINARS AVAILABLE AND loaded 7MILLION ITEMS VIEWED OR DOWNLOADED FREE TO PEDIATRIC HEALTH CARE PROFESSIONALS AND SCIENTISTS RILEY AT AGE 9 ACUTE LYMPHOBLASTIC LEUKEMIA FUNDRAISING & AWARENESS ONLY ST. JUDE 2013 ANNUAL REPORT | Page 36 FUNDRAISING & AWARENESS EMBRACING THE MISSION Unlike any other hospital, the majority of funding for St. Jude comes from individual contributors. THANKS TO EVERYONE WHO SUPPORTS ST. JUDE, WE HAVE THE FREEDOM TO FOCUS ON WHAT MATTERS MOST—SAVING KIDS REGARDLESS OF THEIR FINANCIAL SITUATION. NO FAMILY EVER RECEIVES A BILL FROM ST. JUDE—FOR ANYTHING. That’s because millions of people have made the mission of St. Jude their own. You can, too. Visit stjude.org/waystohelp to find out how you can make a difference. MICHELLE AT AGE 10 PINEOBLASTOMA ONLY ST. JUDE 2013 ANNUAL REPORT | Page 38 ST. JUDE CHILDREN’S RESEARCH HOSPITAL IT COSTS $ IS THE 1.9 MILLION HEALTHCARE CHARITY IN THE U.S. 31REGIONAL FUNDRAISING OFFICES 4 OUT OF 5 AMERICANS RECOGNIZE THE ST. JUDE BRAND ONLY ST. JUDE 2013 ANNUAL REPORT | Page 40 SUPPORT OF LARGEST GENEROUS 2 ND THANKS TO THE TO OPERATE EACH DAY ABOUT } 75 % OF OPERATING FUNDS ARE RAISED BY PRIVATE DONATIONS 9 MILLION ACTIVE DONORS 28 & FORTUNE 1,000 COMPANIES } AVERAGE INDIVIDUAL DONATION $ 33.13 31,000 FUNDRAISING ACTIVITIES EACH YEAR NO FAMILY EVER RECEIVES A BILL FROM ST. JUDE—FOR TREATMENT, TRAVEL, HOUSING OR FOOD, BECAUSE ALL A FAMILY SHOULD WORRY ABOUT IS HELPING THEIR CHILD LIVE. THANK YOU FOR ALL THAT YOU DO FOR THE CHILDREN OF ST. JUDE “WE ARE INCREDIBLY PROUD TO MAKE THIS HISTORIC PLEDGE TO ST. JUDE CHILDREN’S RESEARCH HOSPITAL.” KAYLA AT AGE 8 ACUTE LYMPHOBLASTIC LEUKEMIA “IT’S A LABOR OF LOVE FOR MY ENTIRE FAMILY.” —LAURA BARNETT MOBILE, AL Barnett chairs the Memphis to Mobile Run, which just completed its fourth year. Barnett’s entire family participates in the fundraiser. —ERIC TRUMP PRESIDENT AND FOUNDER OF THE ERIC TRUMP FOUNDATION “I AM SO THANKFUL TO BE ABLE TO BE A PART OF THE MIRACLES THAT HAPPEN AT ST. JUDE.” T he Eric Trump Foundation pledged $20 million to fund state-of-the-art surgery suites and an intensive care unit in a new tower on campus. —THERESA MORRIS RICHMOND, VA M orris volunteers at various St. Jude fundraisers, including the St. Jude Dream Home® Giveaway. She also donates monthly through the St. Jude Partners In Hope program. “IT WAS MORE THAN A RACE FOR US. IT WAS NOT ABOUT US, BUT ABOUT WHAT WE AS A TEAM CAN DO FOR OTHERS.” “WE HAVE HAD A LOT OF ACCOMPLISHMENTS OVER THE LAST FIVE YEARS AS A BUSINESS, BUT NONE OF THEM COME CLOSE TO COMPARING WHAT WE ARE DOING HERE.” —JOE REYNOLDS —MARI NOVO CAPTAIN OF TEAM DIABLOS Members of the team ran the St. Jude Latin Music Miami Beach Half Marathon as St. Jude Heroes. ONLY ST. JUDE 2013 ANNUAL REPORT | Page 42 CO-FOUNDER AND CO-CEO OF RED FROG EVENTS ed Frog Events announced a $25 million commitment toward R opening of the proton therapy center that will be part of a new tower at St. Jude. “WE CAN SAY WE’RE A SMALL TOWN WITH A MILLION-DOLLAR HEART. I AM SO PROUD OF OUR COMMUNITY AND OUR COMMITMENT TO ST. JUDE CHILDREN’S RESEARCH HOSPITAL.” —MELISSA BROWN CO-CHAIR OF MINDEN, LA AUCTION The annual Minden Auction has raised $1 million for St. Jude for two years in a row. “I FEEL REALLY GOOD THAT I’M HELPING OTHER KIDS FEEL BETTER.” —ANNABELLE BALDUCCI WARNER ROBINS, GA For three years, Annabelle has run a lemonade stand at her elementary school’s fall festival to raise funds for St. Jude. SLADE AT AGE 6 ACUTE LYMPHOBLASTIC LEUKEMIA LEADERSHIP & SERVICE ONLY ST. JUDE 2013 ANNUAL REPORT | Page 44 LEGACY OF SERVICE Paul J. Simon Hasan M. El Khatib Ronald Terry Investments FY13 EXECUTIVE ADMINISTRATOR TO THE BOARD Terre Thomas George Elias Jr. Pat Kerr Tigrett Helen B. Wood Manufacturing The members of the ALSAC/St. Jude Boards of Directors and Governors are volunteers from throughout the U.S. who serve without compensation. Writer Many represent the second and third generations of their families who have supported St. Jude through service on the board. An honorary body of Tony Thomas Producer emeritus members recognizes distinguished service on the Board by those unable to continue to actively participate. Paul H. Wein FY13 ALSAC BOARD OF DIRECTORS OFFICERS FY13 MEMBERS Camille F. Sarrouf Jr. Public Relations Attorney | Chairman/President Richard M. Unes Construction | First Vice Chair Paul J. Ayoub Attorney | Second Vice Chair Fred R. Harris Manufacturing | Secretary Joyce Aboussie Susan Mack Aguillard, MD Pediatrician Gabriel Haddad, MD Consultant Frederick M. Azar, MD Robert A. Breit, MD Sheryl A. Bourisk Martha Perine Beard Banking | Second Vice Chair Fred P. Gattas Jr. Business Consultant | Secretary Physician—Oncology/Hematology Joseph S. Ayoub Jr. James B. Barkate Business | First Vice Chair Christopher B. George, MD Judy A. Habib Cardiologist FY13 ST. JUDE BOARD OF GOVERNORS OFFICERS Terry Burman Nuclear Pharmacist and Corporate Pharmacy Quality Manager Mahir R. Awdeh, MD Chief of Staff, Orthopedic Surgeon Radiologist | Chairman/President Fred P. Gattas III, PharmD Real Estate/Title Research Public Relations/Marketing Stephen J. Camer, MD Surgeon Anthony Charaf Aviation Ann M. Danner Real Estate Developer Michael Francis Marketing—Retail Marketing Michael McCoy Sheriff Robert T. Molinet Securities and Corporate Law Dwayne Murray Attorney James O. Naifeh Jr. Helen Nugent Paul K. Hajar Ramzi Nuwayhid Charles C. Hajjar Real Estate Fouad Hajjar, MD Pediatric Hematology/Oncology Bruce B. Hopkins Banking Richard Leyoub Attorney Salli LeVan Business Consultant Paul J. Marcus Investments Thomas C. Wertz Finance Ramzi T. Younis, MD Physician—Otolaryngology Tama Zaydon Investments Banking—Investments Financial Advisor Thomas J. Penn III NBA Administration Camille F. Sarrouf Attorney Joseph C. Shaker Advertising Joseph G. Shaker Advertising George A. Simon II Manufacturing Michael C. Simon Investments FY13 EMERITUS MEMBERS (NONVOTING MEMBERS OF THE BOARD) Sam F. Hamra Attorney Broker Joseph G. Hyder Broadcasting Joseph D. Karam Wendy’s Franchise Owner Richard J. Karam Attorney Banking Judy Lester Business Donald G. Mack, MD Jack A. Belz George M. Maloof V. Reo Campian Speaker Emeritus James O. Naifeh Media Production Real Estate Manufacturing Joseph G. Cory, PhD Professor of Biochemistry Leslie Dale Communications Lewis R. Donelson III Attorney Edward M. Eissey, PhD Designer Pediatrician Attorney Government David B. Nimer Export-Import Talat M. Othman Investments Manal Saab Business Frederick W. Smith Aviation Transportation ALSAC/St. Jude Boards Robert P. Younes, MD Physician Theodore Hazer Thomas G. Abraham Educator ONLY ST. JUDE 2013 ANNUAL REPORT | Page 46 Attorney James A. Kinney Business Pediatrics Cancer Genes and Genome Program Publishing Attorney Pharmaceuticals FY13 EX OFFICIO VOTING MEMBERS Richard Shadyac Jr. CEO ALSAC/St. Jude William E. Evans, PharmD Director/CEO St. Jude Children’s Research Hospital FY13 EPSILON SIGMA ALPHA Susan Winters ESA President (Nonelected member) SCIENTIFIC ADVISORY BOARD The Scientific Advisory Board is an autonomous panel of renowned physicians and scientists who help foster the medical and scientific development of St. Jude, providing guidance and insight on research directions, clinical activities and institutional policy. CHAIR Todd R. Golub, MD Chief Scientific Officer and Director Broad Institute Cancer Program Professor of Pediatrics Harvard Medical School Dana-Farber Cancer Institute Charles A. Dana Investigator Howard Hughes Medical Institute Investigator David S. Eisenberg, PhD William R. Sellers, MD Director, UCLA-DOE Institute for Genomics and Proteomics Professor, Department of Biological Chemistry & Department of Chemistry and Biochemistry University of California – Los Angeles Howard Hughes Medical Institute Investigator Global Head of Oncology Novartis Institutes for BioMedical Research Inc. Marilyn J. Hockenberry, PhD Walker Professor, Division Head University of Wisconsin, Departments of Pediatrics and Human Oncology, and UW Paul P. Carbone Comprehensive Cancer Center Bessie Baker Professor of Nursing Duke University School of Nursing Louise C. Strong, MD William G. Kaelin Jr., MD VICE CHAIR Theodore S. Lawrence, MD, PhD Michael P. Link, MD MEMBERS Eric G. Pamer, MD Chair of Systems Biology Columbia University Valerie P. Castle, MD Ravitz Professor of Pediatrics and Communicable Diseases Chair, Department of Pediatrics Physician-in-Chief, C.S. Mott Children’s Hospital University of Michigan Health System ONLY ST. JUDE 2013 ANNUAL REPORT | Page 48 Professor of Medicine Dana-Farber Cancer Institute and Harvard Medical School Howard Hughes Medical Institute Investigator Isadore Lampe Professor and Chair Department of Radiation Oncology University of Michigan Medical School Andrea Califano, PhD Paul M. Sondel, MD, PhD The Lydia J. Lee Professor of Pediatrics Division of Hematology/Oncology Stanford University School of Medicine Chief, Infectious Diseases Service, Department of Medicine Enid A. Haupt Chair in Clinical Investigation Member and Laboratory Head, Immunology Program Memorial Sloan-Kettering Cancer Center Charles L. Sawyers, MD Chair, Human Oncology and Pathogenesis Program Memorial Sloan-Kettering Cancer Center Howard Hughes Medical Institute Investigator Sue and Radcliffe Killam Chair Professor of Cancer Genetics Department of Cancer Genetics University of Texas M.D. Anderson Cancer Center FUNDRAISING AND MARKETING GUIDANCE Andy Kelly Arnold “Arnie” I. Schwartzman The volunteers who serve on the Professional Advisory Council and the ALSAC Leadership Council are leaders and experts in their fields who meet Margo R. Keyes John Tanner regularly to provide guidance to ALSAC on strategic fundraising issues and ways to raise awareness for the St. Jude mission. LEDIC Management Group Key Development LLC Eunice Mazloom Philanthropist and Volunteer PROFESSIONAL ADVISORY COUNCIL Jose Barra Target Corporation Marty Belz Peabody Hotel Group Doug Brooks Brinker International Jeb Bush Jr. Jeb Bush & Associates LLC Kay Dempsey The Dempsey Companies Joe DeVivo AngioCynamics Inc. Buell G. Duncan III IBM Software Group Daisy Fuentes Shelter Entertainment Don Germano Follett Higher Education Group Greg Gumbel CBS Sports George Joulwan U.S. Army General (Retired) J. David Karam Sbarro LLC Erik Logan OWN, The Oprah Winfrey Network Michael J. Lynch Bank of America Merrill Lynch Maguy Maccario Consulate General of Monaco ALSAC LEADERSHIP COUNCIL Richard A. Abdoo Wisconsin Energy Corporation (Retired) Marilyn Aboussie Retired Chief Justice of the 3rd Court of Appeals, Texas Amin J. Barakat Bryce McTavish Chaz Corzine The MWS Group Trish Coury Coldwell Banker Joseph K. DeLapp II Visioneering Technologies Inc. Airbus North America Holdings Inc. Physician/Clinical Professor of Pediatrics, Georgetown University John M. Engquist Warren Moon Romero Britto Charles A. Feghali T. Allan McArtor Sports 1 Marketing Artist, Britto Central Marianne Silver Nicholas Buttafuoco Coyote Logistics LLC Buttafuoco, Arce & Price Joe Theismann Martha Byrne JRT Associates Inc. Actress Eric Trump Nick Caporella Trump Organization National Beverage Corp. LuAnn Via Terri Carr Christopher & Banks Corporation Russell Weiner Wisteria Fashions Cari Cook Domino’s Pizza Delta Delta Delta Duncan Williams Robert J. “Bob” Corliss Duncan-Williams Inc. CorlissMoore Craig Witsoe Jacqueline Corso Elo Touch ONLY ST. JUDE 2013 ANNUAL REPORT | Page 50 Philanthropist H & E Equipment Services LLC Creative Fuels Georgia Hobaica Frasch Philanthropist Marilena Greig Philanthropist and Volunteer Eileen Hutton MillerCoors Lattimore M. Michael Back Yard Burgers Inc. William N. Morris Jr. The Morris Group Jerry D. Neal RF Micro Devices Scott Nietschmann SNL Restaurant Ventures William C. Perez Adams and Reese LLP Nick J. Rahall U.S. House of Representatives Thomas M. Rashid MD Physician Brilliance Audio (Retired) Gary J. Rotella Randa Fahmy Hudome Andrew San Marco Fahmy Hudome International LLC Lawrence K. Jensen Commercial Advisors LLC Linda Johansen-James American Kiosk Management LLC Gary J. Rotella & Associates PA Tradition Jack Soden Elvis Presley Enterprises Inc. Gary B. Stone Strategic Thinking One on One John L. Strauss The John and Bonnie Strauss Foundation Arent Fox LLP U.S. House of Representatives (former) Prime Policy Group Peter J. Tanous Lepercq Lynx Investment Advisory Amber Valletta Model/Actress Mac Winker The Racquet Club of Memphis (former) ST. JUDE EXECUTIVE COMMITTEE Dr. William E. Evans Director and Chief Executive Officer James Boyett, PhD Chair, Biostatistics Mike Canarios Senior Vice President Chief Financial Officer Andrew M. Davidoff, MD Chair, Surgery Robyn Diaz, JD Chief Legal Officer Senior Vice President Peter Doherty, PhD Nobel Laureate, Immunology Pam Dotson, RN, MBA Chief Nursing Officer Senior Vice President, Patient Care Services James Downing, MD Scientific Director Deputy Director Executive Vice President David W. Ellison, MD, PhD, MRCP (UK) Chair, Pathology Amar Gajjar, MD Cochair, Oncology Chair, Pediatric Medicine Richard Gilbertson, MD, PhD Director, Comprehensive Cancer Center Executive Vice President Douglas Green, PhD Chair, Immunology ONLY ST. JUDE 2013 ANNUAL REPORT | Page 52 Gerard Grosveld, PhD Charles Sherr, MD, PhD Kip Guy, PhD Elaine Tuomanen, MD Chair, Genetics Chair, Chemical Biology and Therapeutics James Ihle, PhD Chair, Biochemistry Chair, Tumor Cell Biology Chair, Infectious Diseases Stephen White, PhD Chair, Structural Biology Larry Kun, MD Clinical Director Executive Vice President Chair, Radiological Sciences Wing Leung, MD ALSAC SENIOR LEADERSHIP TEAM Robert Machen Richard Shadyac Jr. Jeffrey T. Pearson Chief Executive Officer Chief Financial Officer Emily Callahan William Reeser Chief Marketing Officer Christopher Boysen Diane Heyman Nila Carrington Senior Vice President Human Resources Vice President Human Resources Steven Froehlich Karen White Sherry Lear-Park Senior Vice President National Direct Marketing Senior Vice President Strategic Partnerships Vice President Donor Care Melanee Hannock Brenda Abshure Betty MacDougall Vice President Executive Projects Vice President CEO Affairs and Executive Communication Wilfred Busby Cecilia Villa Senior Vice President Field Operations Chief Investment Officer Emily Greer George P. Shadroui Chief Administrative Officer Chief Strategy Officer Senior Vice President Marketing/iGroup Sara Hall Pat Wyatt Sue Harpole Chief Legal Officer Chair, Bone Marrow Transplantation and Cellular Therapy Chief Information Officer Chief Development Officer Senior Vice President Gift Planning Vice President Call Centers Executive Director International Partnerships Thomas Merchant, DO, PhD Chair, Medical Executive Committee James Morgan, PhD Chair, Developmental Neurobiology Clayton Naeve, PhD Chief Information Officer Senior Vice President Sean Phipps, PhD Chair, Behavorial Medicine Ching-Hon Pui, MD Chair, Oncology Mary Anna Quinn Chief Operations and Support Officer Senior Vice President Mary Relling, PharmD Chair, Pharmaceutical Sciences “AT ST. JUDE, WE SET THE STANDARD FOR RESEARCHING AND TREATING CHILDHOOD CANCER AND OTHER DEADLY DISEASES, BECAUSE WE WON’T SETTLE FOR ANYTHING LESS THAN EXCELLENCE FOR THE CHILDREN WHO NEED OUR CARE.” Les Robison, PhD Chair, Epidemiology and Cancer Control —DR. WILLIAM E. EVANS DIRECTOR AND CEO ST. JUDE CHILDREN’S RESEARCH HOSPITAL IZARAH AT AGE 5 ACUTE LYMPHOBLASTIC LEUKEMIA “YOUR SUPPORT MEANS FAMILIES CAN FOCUS ON THEIR CHILDREN AND NOT ON LOOMING MEDICAL BILLS. YOUR GENEROSITY FREES OUR DOCTORS AND SCIENTISTS TO KEEP LOOKING FOR THE BREAKTHROUGHS THAT WILL SAVE CHILDREN’S LIVES.” —RICHARD SHADYAC JR. CEO ALSAC YEARS ENDED JUNE 30 (IN THOUSANDS) 2013 2012 REVENUES Total Support $881,249 Net Patient Service Revenue Research Grants 93,786 95,190 Net Investment Income 201,570 (26,055) Other 10,778 8,636 104,014 TOTAL REVENUES1,291,397 $805,670 95,537 978,978 EXPENSES Program Expenses Patient Care Services 299,875 289,490 Research 315,815 309,832 Education, Training and JORGE AT AGE 8 OSTEOSARCOMA Community Support 76,226 71,524 TOTAL PROGRAM EXPENSES 691,916 670,846 Fundraising 149,477 143,086 Administrative and General 94,358 86,921 TOTAL EXPENSES 935,751 900,853 ALSAC/ST. JUDE CHILDREN’S RESEARCH HOSPITAL COMBINED FINANCIAL HIGHLIGHTS FOR FISCAL YEAR 2013 GAIN (LOSS) ON DISPOSAL OF PROPERTY AND EQUIPMENT (2,008) 354,573 76,117 CHANGE IN NET ASSETS BEGINNING NET ASSETS2,617,756 2,541,639 ENDING NET ASSETS 2,972,329 2,617,756 ONLY ST. JUDE 2013 ANNUAL REPORT | Page 54 (1,073) HILLARY AT AGE 20 NON-HODGKIN LYMPHOMA YOU CAN HELP St. Jude is finding the cures that save children’s lives—every day. That is because people like you support St. Jude. Because of you, no family ever receives a bill from St. Jude. Because of you, our doctors and scientists can seek the knowledge that translates into effective treatments against cancer and other deadly diseases. Because of you, families with critically ill children have hope. BECAUSE OF YOU, THERE IS ST. JUDE. Visit stjude.org to join our mission today. ONLY ST. JUDE 2013 ANNUAL REPORT | Page 56 ©2014 ALSAC/St. Jude Children’s Research Hospital (16087) ONLY ST. JUDE 2013 ANNUAL REPORT | PAGE B
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