CHILDTIMES Produced for Friends of Children’s Medical Center • 2007, Issue 1 To our readers Dear Friends, As we brought 2006 to a close, all of us at Children’s were reminded of those who have so generously supported our mission and vision progress over the last year. We continue to be grateful for and inspired by our community’s dedication to our mission to make life better for children. Thanks to your generosity and investment, great things are happening at Children’s. As you will read in this issue, we are pleased to have opened the Ambulatory Care Pavilion in Dallas and we look forward to providing the same outstanding outpatient specialty care in a new facility with easier access for families. In addition, we celebrate the fact that Children’s has been named one of the country’s Top 25 pediatric hospitals and Top 10 pediatric cardiac programs by Child magazine — a testament to the passion and commitment to excellence in research, patient care and education of our medical staff and employees. Featured in this issue are the stories of how cardiac surgeons on our medical staff implanted the first ventricular assist device to sustain a patient’s life until a heart transplant could be performed, and of the success of our Dean Foods LEAN Families Program designed to help children and families support the development of life-long habits of good nutrition and healthy activities. We hope that you enjoy reading about these and other examples of our groundbreaking clinical work. Thank you again for your support of Children’s. Best wishes to all of you and your families for a happy, healthy new year. Sincerely, Christopher J. Durovich President and Chief Executive Officer Contents Features Treats for the Imagination 15 The Neiman Marcus Adolphus Children’s Parade rolls through the streets of Downtown Dallas for the 19th consecutive year, ringing in the holidays with a colorful combination of pageantry, fantasy and fun for thousands of people lining the parade route and millions watching at home on television. On the cover To Be the First 18 Michael Gonzales, 15, makes medical history at Children’s by becoming the first pediatric patient in Texas — and only the third in the United States — to receive a liver, heart and kidney transplant. Early Discoveries 20 Part I of a two-part series Thanks to advances in fetal diagnostic capabilities, cardiac experts on the medical staff at Children’s were prepared to provide specialized care for Ryan and Reece Robertson — twins diagnosed before birth with identical heart defects — to sustain their lives until a delicate surgical repair could be performed. Something Lost, Something Gained 22 The Searle family develops healthy eating habits after successfully completing the Dean Foods LEAN (Lifestyle Exercise And Nutrition) Families Program, administered through the Clinical Nutrition department at Children’s. Departments Children’s News 2 Children’s kicks off the New Year with the opening of the Ambulatory Care Pavilion in Dallas while the hospital’s cardiac care program earns a Top 10 ranking in a national survey conducted by Child magazine. Medical News 4 Two of the hospital’s physician leaders receive national honors, the Sleep Disorders Center expands and a recent study led by an oncologist on the Children’s medical staff discovers new risks for childhood leukemia and brain tumor survivors. Philanthropic News 6 A $1.5 million gift from the Hoblitzelle Foundation provides Children’s with a new epilepsy monitoring unit, Kohl’s contributions reach the $1 million mark and LegacyTexas Bank deposits $800,000 for Children’s Legacy in Plano. Thanks to minimally invasive surgery available only at Children’s, two tiny scars on 12-year-old Hannah Borg’s abdomen are the only visible signs that she has spent any time at the hospital. The healthy sixth-grader enjoys playing soccer and spending time with family and friends. At age 10, she began enduring recurrent kidney infections, and X-rays showed a partial blockage of the drainage system of the kidney. Dr. Linda Baker, a pediatric urologist on the medical staff at Children’s and associate professor of Urology at UT Southwestern, discovered that Hannah also had the birth defect called horseshoe kidney, which affects about one in 500 children. During fetal development, as the kidneys move into their normal position, horseshoe kidneys fuse together at the lower end, forming a “U” shape. Dr. Baker performed a laparoscopic pyeloplasty operation to repair the blockage in Hannah’s horseshoe kidney. Dr. Baker and Dr. Duncan Wilcox, a pediatric urologist on the medical staff at Children’s and associate professor of Urology at UT Southwestern, are two of only a few physicians in the nation capable of performing laparoscopic surgery for pediatric Urology patients. Community News 24 Children’s leads an enrollment drive for the Children’s Health Insurance Program at four area YWCA facilities, the hospital sponsors an Allosaurus and the Children’s Clean Team gives away 80,000 hand wipes at the State Fair of Texas. Volunteer News 26 Nancy Wenning is inspired by the level of care she sees daily at Children’s, teen Courtney Ludwig sees volunteering as a career move and former patient Margaret Pond knows how to relate to patients. ChildTimes is published quarterly by the Marketing & Public Relations department of Children’s Medical Center Dallas, 1935 Motor Street, Dallas, Texas, 75235. If you have comments or questions, please call us at 214-456-5314 or email us at jamie.yeatts@childrens.com. For more information about Children’s, visit www.childrens.com. Ambulatory Care Pavilion in Dallas opens for patient care Children’s News hildren’s opened its new Ambulatory Care Pavilion in Dallas on Jan. 2, ushering in the New Year with a new level of care and convenience for the children of North Texas. The facility focuses on outpatient care, for which the hospital saw more than 200,000 visits in the past year. Outside, a resurfaced parking lot just off the access road to I-35 and Motor Street allows visitors to park directly in front of the building. Available valet services add to the convenience. Inside, the six-floor, 130,000-square-foot Pavilion houses more than 140 exam rooms, a large physiThe Ambulatory Care Pavilion in Dallas is located for cal/occupational thera- easy access just off Stemmons Freeway. py gym, six audiology booths and various diagnostic and therapeutic programs. The clinical space has been designed using a “neighborhood” concept, placing outpatient services in clusters to improve the efficiency of care delivery and to reduce stress for patients and their families, said Chris Dougherty, vice president of Ambulatory Services. Fourth floor neighborhoods: •Endocrinology, GI, Urology, Genetics/Metabolism, Nutrition •Plastic Surgery, Orthodontics Fifth floor neighborhoods: •ENT, Audiology, Speech •Allergy, Immunology, Asthma, Pulmonary, Cystic Fibrosis, Pulmonary Function Lab •Neurology, Physical Medicine and Rehabilitation, Rheumatology, Surgery, Trauma, Pain Management, Physical Therapy, Occupational Therapy, Adaptive Seating program “Our goal is that every patient will spend at least 50 percent of his or her entire ambulatory encounter receiving the clinical care he came for,” Dougherty said. “That entire clinical encounter includes parking, wayfinding and all the processing and waiting that can occur during the visit.” The Dallas Pavilion features a dedicated patient education area on the fourth floor. The large conference room, which can be divided in The Dallas Pavilion features 130,000 square feet of space housing two, can handle large patient educa140 exam rooms. tion classroom activities such as diabetes education programs. Several smaller consultative areas for smaller group educational activities also are available. The benefits include better settings to educate patients and families outside clinic times and the ability to expand educational services. 2 ● 2007, Issue 1 C Children’s ranked among nation’s Top 25 The February issue of Child magazine solidifies the place Children’s holds among the country’s top pediatric healthcare institutions. Child magazine ranks the hospital as one of the top 25 providers nationally for overall pediatrics, and the Children’s cardiac program is listed among the top 10. Only one other hospital in the state — Texas Children’s Hospital in Houston — earned top 25 overall status. “We are honored to be recognized by Child magazine as one of the leaders in our industry,” said Christopher J. Durovich, president and chief executive officer of Children’s. “All of our employees have played a significant role in reaching this status by virtue of their daily commitment to the children that we serve. We are extremely proud of our cardiac team for its top 10 ranking, and I know that each of us will use this ranking as motivation to continue striving toward this achievement in many more lines of service. Together we can start the year with a renewed commitment to expanding our base of knowledge, to implementing better systems and processes and to providing better customer service — all of which indicate preeminent care for the children of our region.” The rankings were based on an exhaustive, nine-month investigation of pediatric hospitals that are full members of the National Association of Children’s Hospitals and Related Institutions. The hospitals were assessed on vital medical information (survival rates, the number of complex procedures and intricate surgeries conducted, volume of research studies, efforts to reduce medical errors and training for doctors and nurses) as well as child-friendliness, family support and community involvement. Patients, families place notes of gratitude on Thanksgiving Tree T hanksgiving comes but once a year, but Volunteer Services gave patients and families at Children’s nearly a week to express thanks for the care they Campaign highlights commitment to safety We accessorize. We talk back. We I.D. Ask Me Why. receive at the hospital. Linda Golden, a volunteer with 3,000 hours of service to Children’s, initiated this year’s Thanksgiving Tree as a way for patients and staff to write words of thanks on leaves that are taped to the branches. Gillian Norris, a community No two employees at Children’s may respond alike. volunteer, also helped with the project. “The holiday season is a time for giving, and we wanted to provide the patients and their families an outlet to express their emotions,” said Cassie Collins, director of Volunteer Services. “The notes people attached to the Thanksgiving Tree are humbling and remind us of the essential role Children’s plays in the lives of so many young people.” — Cassie Collins, Director of Volunteer Services “The notes people attached to the Thanksgiving Tree are humbling and remind us of the essential role Children’s plays in the lives of so many young people.” “Because my badge tells others who I am and what my qualifications are.” “Because it’s important for me to read back verbal and telephone orders.” “Because I need to properly identify a patient before providing any care.” More than 130 leaves were attached to the tree while it was mounted on a window near the Whistle Stop from Nov. 18 to Nov. 24. The tone of the notes ranged from appreciative, “I am thankful for my princess, Lizette” to somber, “You were my twin. Will miss you so much.” But while the responses may differ, the underlying answer is the same: Because patient safety is the top priority at Children’s. During National Healthcare Quality Week, Children’s kicked off the “Ask Me Why” campaign to demonstrate a commitment to safety and to remind others that everyone can play an important role in patient safety. The campaign uses posters with clever slogans to encourage patient family interaction with caregivers about safety. In addition to the posters, staff and employees are wearing buttons that read “Ask Me Why” to urge parents and visitors to ask questions. The campaign covers everything from hand hygiene and proper identification to privacy. “By educating families and inviting them to ask questions about the care their child is receiving, they become involved members of the safety team,” said Dr. Fiona Levy, vice president of Quality at Children’s. “We want to empower parents and visitors to find out what physicians, nurses and hospital staff are doing to protect their child.” La-Kemya Ross and her sons, 3-year-old L’Kyron, and 5-year-old Oncology patient ZiKarryus, place a leaf on the Thanksgiving Tree. The “Ask Me Why” campaign continues long past Quality Week, Dr. Levy said. New messages will be distributed on a continuing basis to address safety topics for visitors, families, employees and medical staff members. ChildTimes ● 3 Physician leaders receive prestigious national honors o remain a fixture among the country’s most respected pediatric hospitals, Children’s relies on the leadership of its administrators and outstanding medical staff. Recently, two of Children’s most distinguished leaders were honored for their achievements and impact within the national medical community. Medical News T Chief of Pediatrics at Children’s elected to Institute of Medicine Dr. George Lister, chief of Pediatrics at Children’s and chairman of the department of Pediatrics at UT Southwestern, was one of only 65 members elected to the Institute of Medicine in 2006, one of the country’s highest honors for medical researchers. The IOM is a component of the National Academies, an independent organization that advises the federal government on issues affecting science, engineering and the practice of medicine. Election to active membership is one of the most prestigious honors a physician can achieve. At UT Southwestern and Children’s, Dr. Lister leads 15 academic divisions. His research has focused on how to care for children with heart or lung problems. He also led a national research group to study the utility of home monitoring for infants at risk for Sudden Infant Death Syndrome. The results of these studies changed our national policy for care of these infants. Buchanan named 2007 Distinguished Career Award winner Dr. George Buchanan, chief of HematologyOncology at Children’s and professor of Pediatrics at UT Southwestern, received the 2007 Distinguished Career Award presented by the American Society of Pediatric Hematology/Oncology. The ASPHO Distinguished Career Award is given annually to a senior physician who during his career has made a major impact on the subspecialty, through some combination of research, education, patient care and advocacy. Under the leadership of Dr. Buchanan, the Center for Cancer and Blood Disorders at Children’s has become an international center of excellence in patient care, education, clinical and laboratory research and advocacy. 4 ● 2007, Issue 1 Sleep Center expands to accommodate more patients The Sleep Disorders Center at Children’s has opened a new five-bed unit offering the full array of services and specialties to accurately diagnose and fully treat every medical, psychological and behavioral sleep disorder. With three board-certified physicians on the medical staff and significantly reduced wait times, the Children’s sleep service now is able to see a greater number of patients in a shorter amount of time. Led by medical director Dr. Kamal Naqvi, an assistant professor of pediatrics at UT Southwestern, the center is a nationally recognized, fully accredited dedicated sleep disorders center and is affiliated with UT Southwestern. The program, which is the only one of its kind in the Metroplex, offers inpatient and outpatient sleep studies to accommodate the full spectrum of conditions from standard sleep studies for healthy outpatients to severe pulmonary or neuromuscular disease. The wait time for sleep studies is two to three weeks, reduced from four months, with emergency cases seen in as little as 24 hours. Sleep studies are state-of-the-art, 18-channel recordings incorporating all respiratory, cardiac, gastrointestinal and neurological parameters. The studies are beneficial in diagnosing patients who present a number of symptoms. Screening to determine whether a patient needs a sleep study can be done by asking a few simple questions. Procedures include multiple forms of polysomnograms tailored to specific conditions such as Multiple Sleep Latency Test for narcolepsy and Maintenance of Wakefulness test for daytime sleepiness. In addition, the multidisciplinary sleep medicine staff includes pediatricians, neurologists, pulmonologists, child psychiatrists and child psychologists. Procedure helps widen damaged airways in premature infants Children born prematurely (between 25 and 36 weeks gestation) have not developed sufficient lung capacity to adequately breathe on their own. As such, doctors must intubate those patients (place a tube in their throats) to allow a ventilator to breathe for them until they are ready to be extubated about one to three months later. Some need an artificial tube, called a tracheotomy tube, to be placed in their windpipe through their neck to wean them from the ventilator and get them home. But prolonged intubation can scar a child’s voice box to where surgery is required because of a restricted airway. The procedure, called laryngotracheal reconstruction, widens the windpipe so the child eventually won’t have to further rely on a tracheostomy to breathe. Bowers leads study showing increased stroke risk for survivors of childhood leukemia, brain tumors r. Daniel Bowers, an oncologist on the medical staff at Children’s and associate professor of Pediatrics at UT Southwestern, is the lead author of a recently published study that shows that long-term survivors of childhood leukemia and brain tumors are at increased risk of stroke years after their cancer treatment has ended. The research, conducted as part of the Childhood Cancer Survivor Study, was published in the November edition of the Journal of Clinical Oncology. “It is important for “This is the first study to show that childhood leukemia and brain tumor sursurvivors and their vivors are at an increased risk of stroke,” doctors to know Dr. Bowers said. “These strokes can occur that the impact of 10 to 20 years after diagnosis, when most some of these longpeople believe they are no longer at risk for new side effects of treatment.” term effects can be Leukemia and brain tumors together reduced through account for 53 percent of all cancers careful follow-up diagnosed in children younger than 15. Current five-year survival rates are nearly screening and care, 80 percent for leukemia and 74 percent and education to for brain tumors. help survivors stay Treatment for both diseases involves healthy long after therapy that targets the central nervous system; brain tumors usually require their treatment moderate- or high-dose radiation therapy, has ended.” known as cranial radiotherapy. Leukemia — Dr. Daniel Bowers, treatments include drugs injected directly Oncologist into the spinal fluid. D In most cases, a portion of cartilage from the patient’s ribcage is used as molding to reconstruct the airway. Doctors make an incision in the neck, open the voice box without injuring the vocal cords and rid the area of excess scar tissue. Dr. John McClay, a member of the medical staff at Children’s and an associate professor in Pediatric Otolaryngology at UT Southwestern, said the hospital conducts 10 to 12 of these operations each year. The goal, he said, is to create a center at Children’s that can take care of all airway problems in children. “Children’s has some of the best equipment and is the best facility in North Texas to take care of kids with complex airway problems,” Dr. McClay said. “We understand that each child has his/her own unique issues to deal with, and we continually try to formulate the best treatment options for these complex kids.” Dr. Daniel Bowers, who specializes in childhood brain tumors, visits with a patient. Dr. Bowers led a recent study showing that survivors of childhood leukemia and brain tumors are at an increased risk of stroke. “It is important for survivors and their doctors to know that the impact of some of these long-term effects can be reduced through careful follow-up screening and care, and education to help survivors stay healthy long after their treatment has ended,” Dr. Bowers said. “This study shows that we’re not there yet. These efforts must be increased and improved.” Children’s is the only North Texas institution participating in the National Institutes of Health-sponsored Childhood Cancer Survivor Study. ChildTimes ● 5 Philanthropic News Annual tennis tournament raises more than $130,000 for cancer research, treatment early 600 tennis players ages 8 to 18 from around the region descended on the High Point Tennis Center in Plano Sept. 16-17 for the 16th annual Children Helping Children Junior Singles Tennis Tournament presented by Capital One. This year’s tournament raised more than $130,000, with half of the proceeds going to support the Center for Cancer and Blood Disorders at Children’s and half going to the hospital’s After the Cancer Experience program. Since 1991, the Children Helping Children event has raised more than $1.8 million for vital clinical research and treatment programs at Children’s aimed at fighting pediatric cancers. Players participated in super championship, championship and regular singles matches sanctioned by the United States Tennis Association and the Texas Tennis Association. For Pam and Ken Sumrow, the tournament is the perfect way to combine the family’s love of tennis with their desire to help other families facing the challenge of caring for a child with cancer. N Above: Pam Sumrow, event co-chair, congratulates Chelsea Young of McKinney for being one of the top fund-raisers. Right: Hudson Akin, executive vice president of the Children’s Office of Development, thanks Tyler Womack a four-year tournament participant from Hurst for sharing the powerful story of his cousin, whose heart was donated to a Children’s patient after he was involved in a fatal accident. 6 ● 2007, Issue 1 Kent Eastman, Dallas-Fort Worth president and commercial banking manager for Capital One, and Ken Sumrow, event co-chair. Ken is director of the High Point Tennis Center, while Pam serves as the tournament’s co-chair. Their son, Clint, was treated at Children’s for cancer at an early age. “When we first started this I didn’t know how kids would react to this tournament,” Ken said. “They obviously have done a wonderful job.” Clint recently graduated from the University of Texas at Austin. “Obviously this is a special event to us,” Pam said. “Children’s was so important to our son’s life. They helped him get healthy and helped him through his recovery. We always wanted to give something back.” Tournament is more than just a sporting event for players or the top male and female fund-raisers in the 2006 Children Helping Children tennis tournament presented by Capital One, it’s not the sport that motivates these players — it’s the opportunity to support the search for new cures and treatments for pediatric cancers. Nina Quirk, a 12-year-old player who attends Renner Middle School in Plano, entered the tournament for the first time in 2005. At the kickoff party before the first day of play, she heard a patient from the Center for Cancer and Blood Disorders at Children’s tell his story. “Then I understood the medical reason for the tournament,” she said. “Tennis was kind of a bonus.” In her first year of fund-raising, Nina went door-to-door to raise $250. This year, she launched a fund-raising Web page through www.childrens.com. As a result, Quirk surpassed her goal of raising $2,000 and reached almost $3,000. For Jeffrey Feldman, raising funds to support pediatric cancer research took on new meaning when one of his classmates, whom he had known since kindergarten, lost her battle with cancer. The 15-year-old sophomore at The Shelton School has played in the tennis Jeffrey Feldman raised nearly tournament for five years and has been $11,000 for cancer research. fund-raising for the past two. In August, he began sending letters to family and friends to raise pledges and then thanked each contributor with a personal phone call. He raised almost $11,000 — eclipsing his 2005 total of more than $8,000. “When you win a tennis match, it’s not that big of a deal in reality,” Feldman said. “But when you raise money for a cause, that’s serious; you can actually help other people.” F From left, Tom, Theresa, Jamie and Nina Quirk of Plano are congratulated by Christopher J. Durovich, president and chief executive officer of Children’s, for Nina being the top female fund-raiser. 2006 Children Helping Children Junior Singles Tennis Tournament Sponsors Presenting Capital One Exhibition UnitedHealthcare KTVT-TV Channel 11 Championship Fossil Head/Penn The Prince Sports Group Wilson Ace Dallas Stars Jones Soda Llano Utility Services, Inc. Northcut & Associates: Investments and Insurance The Shops at Willow Bend Sundog Eyewear Advantage Central Market – Plano Don Grimes, Real Estate Appraiser Firehouse Subs Metrocrest Orthopaedics and Sports Medicine Metroplex Tennis League Pro Staff Personnel Services Tournament Friends Department 56 Sales, Inc. Domino’s Pizza Global Views John Newcombe Tennis Ranch Lufthansa Airlines Six Flags Over Texas Sodexho Health Care Services Southwest Airlines Swiss American Products Tom Thumb Whataburger Children’s extends a special thanks to its 2006 court sponsors. ChildTimes ● 7 Philanthropic News Estess honored for three decades of service to Children’s, community at large andra Estess has been named the 2006 Outstanding Volunteer Fundraiser by the Greater Dallas Chapter of the Association of Fundraising Professionals. The award was presented at the 21st annual awards luncheon on Nov. 2 celebrating National Philanthropy Day. Estess has devoted more than 30 years to the advocacy of quality healthcare and education for all children and in service to the community. She has been a key advocate for Children’s since the 1970s when she was a volunteer in the Social Work department. Over the years she expanded her work with Children’s to include membership on the boards of Texas Health Services, Children’s Medical Center and the Children’s Medical Center Foundation Board of Trustees. In 2005 Estess received the Distinguished Service to Children’s Award from the hospital in recognition of her volunteer leadership of the successful $150 million wePromise Campaign for Children’s Dallas. The wePromise Campaign was the most ambitious and successful fund-raising effort in the history of Children’s, ending one year early and surpassing the goal to raise $160 million. The campaign allowed Children’s to expand patient care floors, towers and buildings, as well as enhance clinical programs and recruit physician sub specialists. Currently, Estess serves on the boards of Children’s Medical Center Dallas, Children’s Health Services of Texas and the Children’s Medical Center Foundation Board of Trustees. She also is a member of the Foundation’s executive committee. S Luncheon, letter-writing campaign kick off Circle of Friends fund-raising efforts for Red Wagon Fund Almost 3,000 letters were signed at the annual September the number of individual donors who give a minimum of luncheon to begin the 2006 Circle of Friends Committee $1,000 annually. fund-raising initiative. The letter-writing campaign is Last year more than 800 contributors responded to the focused on raising gifts of $1,000 or more to support the committee’s letter campaign. Their names are inscribed Red Wagon Annual Fund at Children’s. on a wagon-shaped display in the lobby of the hospital. This year the committee of more than 30 volunteer “We have a wonderful committee this year that is community leaders is seeking to obtain 100 percent genuinely committed to Children’s,” said Caren Kline, committee participation while substantially increasing 2006 chair of the Circle of Friends committee. “I am From left, Barbara Stuart, Margaret Hancock and Debbie Francis discuss ways to make this year’s campaign even more successful. confident their efforts over the next year will be extremely successful.” The Red Wagon Fund, named after the red wagons used to transport patients in the hospital, is a general fund that provides vital assistance to Children’s. The fund’s undesignated gifts can be applied quickly where they are needed most. The Circle of Friends Committee originated in 1998 under the leadership of Randi Halsell. Home giveaway raises funds for children in North Texas Donated by Meritage Homes and worth an estimated $500,000, the All-Star Miracle Home was raffled to one lucky winner Feb. 28. The raffle was expected to raise needed funds for Children’s, Cook Children’s Medical Center in Fort Worth and the Dallas Mavericks Foundation. Hoblitzelle gift brings latest technology to epilepsy patients hanks to a $1.5 million gift from the Hoblitzelle Foundation, Children’s is the proud home of a state-of-the-art epilepsy monitoring unit. The EMU is located on the sixth floor of the hospital. The 3,600-square-foot, six-bed unit is staffed by nurses, technicians and two full-time physicians on the medical staff with expertise in epilepsy and other neurological conditions. T The two-story, 4,000-square-foot All-Star Miracle Home is located in Carrollton. The home is completely furnished, courtesy of Ashley Furniture Homestores, fully landscaped and features a deluxe swimming pool courtesy of Anthony & Sylvan Pools. The home is open every day from noon to 5 p.m. for complimentary tours hosted by RE/MAX agents. Founded in 1996 in Phoenix, The Home of Miracles, now called the All-Star Miracle Home, is a nationally recognized home giveaway program that has resulted in more than $8 million raised for charity and six home winners to date. Hudson Akin, executive vice president of Development at Children’s, leads the ribbon-cutting ceremony and grand opening celebration for the All-Star Miracle Home. For years, Meritage Homes, a national home builder, has hosted the program by donating a fully furnished home and raffling it off to one winner. This year, through a relationship with Children’s Miracle Network, Meritage Homes is hosting the program in the Metroplex. By purchasing a $100 entry, participants had a chance to win a luxury home while making miracles happen for children in the community. For more information, call 877-564-7225 or visit the Web site at www.allstarmiraclehome.com/dfw, where you can view floor plans, take a virtual tour and see photos of the home. Douglas Lowe looks over his 7-year-old daughter, Elaina, during her stay in the new epilepsy monitoring unit. Advances in technology mean patients on the EMU now can leave their rooms and play in a staffed playroom while continuing to be monitored. Five rooms in the critical care unit also are networked to the EMU, allowing professional staff to maintain 24-hour records on patients’ post-epilepsy surgical conditions. This networking allows interpreting physicians at the hospital to read the electroencephalogram from any computer at any time, on or off campus. “Cutting-edge video-EEG monitoring will be utilized to make and confirm diagnosis in some patients, while in others it will provide information for us to choose a better treatment plan,” said Dr. Susan Arnold, director of the Pediatric Epilepsy Program at Children’s and associate professor of Neurology at UT Southwestern. With the expansion of the EMU, the hospital now is better suited to serve epilepsy patients who need a more comprehensive evaluation of their disorder to determine proper treatment. 2007 Family Night at Six Flags set for April 13 On Friday, April 13, Family Night at Six Flags will celebrate its 39th year of fun and fund-raising for Children’s. The event will take place from 5 to 11 p.m. and will feature special entertainment during the evening on various stages throughout the park. Family Night at Six Flags is sponsored by the Women’s Auxiliary to Children’s. Tom Thumb Food and Pharmacy has returned as the presenting sponsor. All proceeds from the evening will go to fund the Women’s Auxiliary 12th Floor Critical Care Unit at Children’s. Advance tickets for Family Night at Six Flags can be purchased for $25 each and are available at the customer service desk of all Tom Thumb, Tom Thumb Flagship and Simon David stores. Tickets will be available at the gate the night of the event and by calling 214-456-8371. Children ages 2 and younger will be admitted free. ChildTimes ● 9 Coming full circle Philanthropic News Children’s Circle of Care members make a difference for children – including their own compelling firsthand account at the fall reception for the 2006 Children’s Circle of Care conveyed a powerful message to the group that their support of Children’s touches the lives of all families — including their own members. Kelly and Steve Gruber, current members, shared the story of their 1-year-old daughter, Sadie, who was diagnosed with Beckwith-Wiedemann Syndrome, a rare genetic disorder. For the Grubers, having access to world-class medicine, physicians and research at Children’s will make a crucial difference in their lives and to Sadie’s. The annual reception, hosted in the home of Children’s Circle of Care members Alan and Randy Engstrom, honors the generosity of individuals who make gifts annually of $10,000 or Former Children’s CEO James Farnsworth and wife Betty with Children’s Trustee Ken Klaveness. more to Children’s. “We are so grateful for the members’ dedication to Children’s each year,” said Hudson Akin, executive vice president of Development. “Their commitment to give at this level expands our ability to develop the best patient care and to treat the thousands of children who In the beginning of their membership in the Children’s Circle of seek our help.” Care, the support of Children’s simply aligned with Kelly and Children’s is one of 22 pediatric hospitals Steve Gruber’s personal philosophy of community philanthropy. in North America that participate in the The couple became involved with the Children’s Circle of International Children’s Circle of Care organiCare through some friends. Gruber is a founding partner of the zation. Founded in 1995, the group’s mission is law firm Blumenthal & Gruber. to advance philanthropic support and advocacy Steve was a believer in the hospital’s mission, but with two for the health and well-being of children by healthy children at home, he had never experienced it. Then, educating and recognizing leading benefactors last October, Sadie was born. During a routine checkup, the of participating children’s hospitals. pediatrician recognized symptoms for Beckwith-Wiedemann Individuals who gave Syndrome, a rare genetic disorder that causes an overgrowth of $10,000 or more in 2006 cells. The disorder makes Sadie highly susceptible to tumors or are recognized by the aggressive pediatric cancers. Children’s Circle of Care “It was a bad and confusing and are invited to the 2007 time,” Gruber said. “And we had Leadership Conference & another problem; with such a Gala, May 2-4 in Boston. rare syndrome, where could we For more information find help?” about giving, call the The answer was at Children’s. Office of Development at Dr. Gail Tomlinson, director of the 214-456-8360. After the Cancer Experience (ACE) Program in the Center of Cancer Above: Children’s Circle of and Blood Disorders at Children’s Care Reception hosts and associate professor of Pediatrics Randy and Alan Engstrom. at UT Southwestern, is a pediatric Steve and Kelly Gruber Right: Coco and Tony Good oncologist experienced in treating of Alliance Data. children with Beckwith-Wiedemann Syndrome. Sadie will have to be screened for cancer every six weeks until the age of 5. “But if cancer does happen, I know we will find it, and it will be taken care of,” Gruber said. “What does it mean to have a hospital that attracts preeminent pediatric specialists? It means everything,” Gruber said. “I had to tell everyone about the good things that were happening at Children’s. “I went from being a believer to a disciple.” 10 ● 2007, Issue 1 A Couple’s support for Children’s goes both ways Children’s Miracle Network Radiothon raises money, awareness for Children’s Kohl’s contributions to hospital reach $1 million with latest gift The fifth annual Children’s Miracle Network Radiothon, held Sept. 79, raised more than $370,000 for the first time this year. The event was broadcast by The New 103.7 lite fm. Proceeds from the radiothon will be divided between Children’s and Cook Children’s Medical Center in Fort Worth. The Radiothon aired a number of miracle stories and profiles of children who survived life-threatening illnesses and injuries, as well as interviews with caretakers at Children’s and Cook Children’s. Stories also covered information about services offered at both pediatric hospitals. Children’s Miracle Network is an international nonprofit organization dedicated to helping children by raising funds and awareness for 170 children’s hospitals throughout North America. Proceeds raised in each region go directly to support children’s hospitals in that region. A recent gift of more than $250,000 to Children’s through the Kohl’s Cares for Kids program has lifted the Wisconsinbased retailer’s combined giving to Children’s to more than $1 million over the past six years. The $252,950 donation from Kohl’s Department Stores will support the hospital’s Sports Injury Outreach Program. Organization donates funds for family great room at Children’s Legacy facility Love for Children, Inc. recently presented a check to Children’s for $195,000, marking the third consecutive year the organization has given the hospital. Recently the group, in conjunction with the Dallas Stars Foundation, pledged $500,000 to fund a 1,282-square-foot family great room at Children’s Legacy. The room will be subdivided into a play area, a study space and a family room. This year’s gift is the largest that Love for Children has donated to Children’s. Hudson Akin, executive vice president of Development, accepted the check on the behalf of Children’s. At Ameriquest Field in Arlington during a Texas Rangers game, Joe Cardaropoli, district manager for Kohl’s North Dallas Region, enlists the help of Texas Rangers’ mascot, Stampede, and Connor Waggoner, who threw the first pitch of the game, to present a check to Children’s. Hudson Akin, executive vice president of Development at Children’s, received the check on behalf of the hospital. “Kohl’s is proud to join with Children’s and support its involvement in the community as it provides vital services to children and families,” said Julie Gardner, senior vice president of marketing for Kohl’s Department Stores. “Kohl’s is committed to improving pediatric health, and we know our gift to Children’s will make that happen.” Kohl’s Cares for Kids is a nationwide program that raises funds for pediatric hospitals through the sale of special gift items. The net profits support children’s health and educational opportunities. Children’s is the local beneficiary. “We at Children’s are thankful for the extraordinary commitment from Kohl’s over the years,” said Hudson Akin, executive vice president of Development at Children’s. “Their gifts play a valuable role in helping us to pursue our mission.” From left, Stacy Hicks, vice president of Love for Children; Jennifer Jones, secretary and treasurer of Love for Children; Hudson Akin, executive vice president of Development at Children’s; and Michelle Fraser, president of Love for Children. The Sports Injury Outreach Program of Children’s educates coaches, parents and children who participate in youth sports about the potential for sports-related injuries and how to prevent them. Physicians, nurses and dietitians from the hospital conduct educational clinics for basketball, softball, baseball, football, soccer and track. Since 2003, the program has reached more than 20,000 coaches and 240,000 children. ChildTimes ● 11 Philanthropic News LegacyTexas Bank contributes $800,000 for Children’s Legacy in Plano ne of Collin County’s most storied and civic-minded institutions has joined forces with Children’s to help bring the best pediatric healthcare services to the ever-growing North Texas community. LegacyTexas Bank, a locally owned bank that has served the residents of Plano for more than 40 years, has announced it will contribute $800,000 to support the construction of Children’s Medical Center Legacy. Patrick Shelby, chairman of the board at LegacyTexas Bank, said his organization always has remained grounded as a community bank and as an upstanding corporate citizen in the city of Plano. “Community-minded is how we started out over 40 From left, Patrick Shelby, chairman of the board, and George Fisk, chief executive officer of LegacyTexas Bank. years ago, and it’s how we’re going to continue to be in the future,” he said. “Children’s coming to this region is probably one of the best things that could possibly happen, and we’ve tried to be involved since its inception. As Children’s continues to establish its roots in Collin County, we’ll be there to help in anyway we can.” The gift from LegacyTexas Bank will help fund the construction of the garden level at Children’s Legacy. The garden level will house critical areas for the hospital, such as the clinical laboratory, the pharmacy laboratory, sterile processing, engineering and the dining area. Children’s Legacy is scheduled to open in 2008. The 72-bed hospital will include an urgent/emergency care center, four operating rooms, full-service laboratory and comprehensive radiological services. Children’s Legacy primarily will serve patients from Collin, Cooke, Denton, Fannin and Grayson counties. O United Way citywide campaign begins at Children’s From left, Christopher J. Durovich, president and chief executive officer of Children’s; Gary Godsey, president and chief executive officer of United Way of Metropolitan Dallas; Cynthia Nunn, Center for Nonprofit Management; Joel Allison, president and chief executive officer of Baylor Health Care System in Dallas; and P. Scott Ozanus of KPMG unveil United Way’s goal of more than $53 million. 12 ● 2007, Issue 1 In 2006, Children’s received more than $1 million in support from the United Way of Metropolitan Dallas. On the morning of Sept. 14, Children’s showed its support of the United Way by hosting the kickoff celebration for the organization’s 2006 fund-raising campaign in North Texas. Channels KDFW-Fox 4 and KTVT-CBS 11 joined The Dallas Morning News to cover the standing-room only event in Moore Auditorium, where the United Way announced its goal of raising more than $53 million for Dallas, Collin, Rockwall and a portion of Denton counties. After the event, hospital employees filed through Moore Auditorium to turn in United Way pledge cards. The United Way is the largest private funding source of health and human services in North Texas and supports many programs at Children’s, including the At Risk Children’s Center, the Dental Clinic, The Cystic Fibrosis Clinic, the TexCare Outreach Program and the Dean Foods LEAN Families Program. Little Children’s Medical Center Planned Giving Council members Chairman: Richard D. Trubitt Lane, Gorman & Trubitt, L.L.P. Larry Anders Summit Alliance Companies Lise E. Anderson Anderson & Brocious, P.C. Eric W. Bennett Tolleson Wealth Management John F. Bergner Winstead, Sechrest & Minick, P.C. Bruce E. Bernstien Bruce E. Bernstien & Associates, P.C. Richard Bernstein Bernstein Conklin & Balcombe John D. Bounds Secure Directions Jon M. Bradley Weaver & Tidwell, L.L.P. R. Craig Brubaker Bluffview Wealth Management Bill E. Carter Carter Financial Management Edward A. Copley Akin, Gump, Strauss, Hauer & Feld, L.L.P. William J. Corbellini Merrill Lynch Private Banking & Investment Group Deborah Cox JPMorgan Private Bank Children’s Medical Center Planned Giving Council Reasons to give hildren’s has an influential group of advocates known as its Planned Giving Council. This group is made up of professional advisors, such as attorneys, bankers, accountants and insurance specialists who counsel many of the hospital’s contributors. These experts work with Children’s to provide information about gift opportunities with the hospital that best serve their clients’ philanthropic and financial goals. The Planned Giving Council consists of highly respected professionals who support the planned giving program at Children’s by: •Learning about and experiencing the programs at Children’s and serving as ambassadors for the hospital in the community •Recognizing charitable planning opportunities that may benefit Children’s. Jayne Grimes, planned giving officer, and John Bounds •Sharing experience and expertise in planned giving matters with the Office of and John Harris, planned giving council members. Development. •Giving personal philanthropic support to Children’s by naming Children’s in their will, by making an annual gift of $1,000 or more or by supporting the hospital’s special event initiatives. A Leadership Committee of the Council meets an additional two times per year to provide strategic direction. Committee members include John Bounds, Craig Brubaker, Bill Carter, Kathy Henkel, Mike McCullough and Richard Trubitt (chairman). C We are grateful to all of these busy individuals who give their time and talent on the Planned Giving Council in support of our mission to make life better for children. Morris Gregory Sykes, Gregory & Company, P.C. Sam Guerin Wells Fargo Bank/Trust and Private Services James B. (Jim) Harrell John W. Harris Jordan, Dunlap, Prather & Harris L.L.P. Kathryn (Kathy) G. Henkel Hughes & Luce, L.L.P. Pat Lacy Patrick Lacy, P.C. Stephen Maus New York Life Davidson joins Children’s Office of Development Ann Davidson joined Children’s Oct. 16 as director of Development. Davidson will be responsible for working with major and planned giving donors and projects to obtain charitable gifts for the support of Children’s. Prior to joining Children’s, Davidson worked eight years in trust banking and investment management with First National Bank of Abilene. She worked nine years in development as assistant vice president for principal and planned gifts at Rice University in Houston. She served one year as director of development for Fossil Rim Wildfire Center in Glen Rose, funded by a grant from the Meadows Foundation and one year as director of development for the College of Engineering at the University of Texas at Arlington. Davidson has a bachelor of business administration degree from McMurry University in Abilene, Texas. Paul McClung Northwestern Mutual Life P. Mike McCullough Thompson & Knight, L.L.P. Kathy Muldoon Carter Financial Management Terry L. Simmons Thompson & Knight, P.C. Can we help? Careful planning often is required when considering a charitable gift. If you would like to discuss a particular gift to Children’s and its potential tax benefits, please email ann.davidson@childrens.com or call 214-456-8360. The Office of Development is here for your assistance and welcomes your calls. The information on this page is not intended as legal, tax or investment advice. For such advice, please consult an attorney, tax professional or investment professional. Above left: Parade volunteers carry the Santa Claus inflatable down Commerce Street. Above right: Cherry Werner, a Concierge employee at Children’s, and her daughter, Paula McCurdy, volunteered as clowns for the second year in a row at the Neiman Marcus Adolphus Children’s Parade. Center: Neiman Marcus and The Adolphus Hotel have served as the title sponsors of the parade for nearly two decades. Left: Performers from high schools all across the Metroplex volunteered their talents to make the parade as magical as ever. TREATS FOR THE Imagination Children’s Medical Center benefits from 19th annual holiday parade espite the chilly conditions, children of all ages saw their dreams come to life Dec. 2 at Dallas’ annual holiday celebration — the Neiman Marcus Adolphus Children’s Parade. Now in its 19th year, and televised world-wide via the Armed Forces Network, the parade benefiting Children’s captivated and entertained the crowd with familiar costume characters, colorful floats and giant inflatable balloons. “Everyone at Children’s looks forward to the celebration and excitement of the Parade throughout the year,” said Christopher J. Durovich, president and chief executive officer of Children’s. “Not only is it fun, but also it benefits the life-saving work we do at the hospital each day. We greatly appreciate the dedication of all who give so tirelessly to make this special event a success.” D Floats run gamut from contemporary to classic The parade’s tradition of theme-based floats continued again this year, featuring favorite, fun activity scenes with a holiday twist. Parade goers were able to see a holiday sock hop, a festive Saturday in the park and a candy garden roll right in front of their eyes. Curious George, Clifford and the Teletubbies were among the many giant inflatable balloons that brought eyes to the skies above Commerce Street. Viewers were also treated to the traditional parade features including high-stepping equestrian units, dazzling dancers and, of course, Santa and Mrs. Claus. Heroic comic book characters Captain America, Cyclops, Batman, Wolverine and Spider-Man also made appearances. Loveable storybook and television characters such as the Berenstain Bears, Bugs Bunny, Madeline, Arthur and Daffy Duck delighted the crowds as well. Additional timeless classics including Snoopy, the Care Bears, Strawberry Shortcake and the Cat in the Hat entertained all during the holiday festivities. “Every year the Neiman Marcus Adolphus Children’s Parade inspires audiences across the country with its magical delights,” said Karen Ranker, parade director and director of Human Resources for The Adolphus. “This year’s parade fulfilled that wonderful tradition of delivering festivities and joy for the holidays.” Not just a local event While the Neiman Marcus Adolphus Children’s Parade, also known as the “Miracle on Commerce Street,” annually draws local Children’s provides special mailboxes for letters to Santa Mailing a wish list to Santa is a time-honored holiday tradition that families everywhere have enjoyed almost as long as there have been mailboxes. The tradition is upheld at Children’s, where throughout the holiday season patients and their families were encouraged to bring their letters to Santa to one of two special mailboxes at the hospital. Suzette Rivera, a concierge at the hospital, checked the mailboxes each day and forwarded the letters on to the North Pole. “It’s actually kind of exciting to check the mailboxes and see how many letters have been Jackson Huse, a 5-year-old patient recently diagnosed with a brain tumor, dropped off,” Rivera drops off his letter to Santa. Letters said. “It brings back a placed in the mailboxes were routed sense of my childhood and really embodies the directly to the North Pole. holiday spirit.” crowds of more than 350,000 to the streets of downtown Dallas, millions more enjoy the parade from their living rooms at home. An estimated 118 million households from Alaska to Bermuda watched the parade last year through television syndication on 338 stations. WFAA-TV Channel 8 has been the official parade television sponsor and has carried the local broadcast for the past 17 years. “As we near our 100th year as a member of the Dallas community, the spirit of gratitude is more important than ever,” said Karen Katz, president and CEO of Neiman Marcus. “It is because of the incredibly kind and generous Dallas community ChildTimes ● 15 Neiman Marcus Adolphus Children’s Parade 2006 Sponsors that we give the gift of this parade to the children, especially those at Children’s Medical Center. For this, we at Neiman Marcus are truly grateful.” A history of excellence Neiman Marcus The Adolphus 94.9 FM KLTY Accenture Alliance Data American Airlines Atrium Companies, Inc. Barrow, Hanley, Mewhinney & Strauss Inc. Borden Dairy Capital One Central West of Texas Chuck E. Cheese’s Coca-Cola Enterprises Dallas Area Rapid Transit (DART) DOWNTOWNDALLAS E-Data Alliance Ebby Halliday, REALTORS Hyatt Regency Dallas J&S Audio Visual Jonathan Bailey Associates - Healthcare Architects Mrs Baird’s Owens Country Sausage Park Place Dealerships PlainsCapital Bank Reel FX Creative Studios Schepps Dairy Six Flags Over Texas Sodexho Health Care Services Starbucks Coffee Company Texas Health Resources The Dallas Morning News The Magnolia Hotel The Sewell Family of Dealerships Thompson & Knight LLP Univision Wal-Mart / SAM’S CLUB Wells Fargo WFAA -TV Channel 8 Special thanks to a caring corporate sponsor that wishes to remain anonymous 16 ● 2007, Issue 1 The Neiman Marcus Adolphus Children’s Parade began as a gift to the children of Dallas from The Adolphus hotel. It has evolved into a national display of holiday hopes and dreams and a tradition for families nationwide. “No contribution The Adolphus makes to our community has as much meaning as the one we make to Children’s Medical Center each holiday season,” said Tom E. Garcia, managing director of The Adolphus. “The parade is the perfect representation of what we feel in our hearts for Children’s and its quality of care.” The parade’s history of excellence includes honors such as the 2003 Gold Grand Pinnacle award from the International Festival and Events Association. The 2005 parade received two awards from the Texas Festival and Events Association — Best Full Length Television Program and Best Commemorative Poster. All proceeds from the parade are designated to support the Child Life program at Children’s. Child Life provides specialized services to families seeking treatment at Children’s, including music therapy, bedside activities, teen support groups and medical camps. Holiday ceremony lights up the night at Children’s ith the ongoing construction of Tower III providing a scenic backdrop, the annual Children’s Tree Lighting Ceremony took on the themes of growth and giving while lending an eye toward the hospital’s future. As the crowd assembled near the Children’s main entrance, a pair of jugglers, two rosy-cheeked Nutcracker soldiers on stilts, an array of clowns and a caricaturist provided entertainment. The evening was brisk and windy, but patients and their families weren’t about to miss out on the festivities. They stayed warm by huddling together on sets of bleachers and shielding themselves from the elements with blankets. Those unable to come outside either could peer out from windows on their floors or watch it on television via simulcast in their rooms. The Golden Girls, a dance team from Plano East High School, performed to holiday music, and a New Orleans-style jazz band also played holiday carols. Adding to the ceremony were appearances by the Snow Queens, Bob the Builder and Jack the Rabbit — the Children’s mascot. Midway through the occasion, Santa Claus himself drove in on an all-terrain vehicle followed closely by a band of merry elves carrying sacks of toys they passed out to patients. Santa climbed atop the platform and was joined by Rockwall’s Jack Colbert, a 9-year-old cystic fibrosis patient at Children’s, who flipped the oversized light switch that sparked off a massive display of holiday lights. The centerpiece of the Children’s holiday décor is a 30-foot-tall tree adorned with 300,000 twinkling lights. Adding to the spectacle was a host of other lighted trees and decorative wooden cutouts that built on the growth and construction themes. W Above left: More than 350,000 spectators watched as performers danced their way down Commerce Street during the 19th annual Neiman Marcus Adolphus Children’s Parade. All proceeds from the parade benefit the Child Life department at Children’s. Right: Holiday decorations at Children’s took on the construction and growth themes that were apparent throughout the hospital. Patients, employees experience parade as participants hristopher Randall, right, wasn’t going to let sub-freezing temperatures derail his chance to shine in front of the cameras. Christopher, 8, is a sickle cell disease patient in the Center for Cancer and Blood Disorders at Children’s. Sickle cell patients often have adverse reactions to chilly temperatures, but Christopher bundled up and was in high spirits as he proved his buddies back in Mesquite wrong. “I think the neatest thing is my friends will see me,” he said. “I told them I’m going to be on TV, but they don’t believe me.” Christopher’s mother, Kenna Bowers, said his vivacious personality and strong will made him the perfect candidate to represent Children’s in the parade. “He knows his limitations, and he’ll tell me, “Mama I can do it,’ and I know he can,” she said. “He amazes me. He takes it like a little soldier.” C en Retta, above, the hospital’s director of Social Work, has a tireless enthusiasm for his job and for the mission of Children’s. He also has tireless enthusiasm for the Neiman Marcus Adolphus Children’s Parade. Retta has volunteered as a bleacher host at the last seven parades, and once again this year he donned the familiar white sweatshirt and red sweatpants that make up the traditional volunteer uniform. The parade is a wonderful gift to the children of Dallas in terms of providing both holiday delight and proceeds for the Child Life department at Children’s, Retta said. “When you see so many people come together to create something so magical, you know you’re a part of something special,” he said. “Children’s and the parade are living, breathing entities. They are alive and have purpose, and I’m grateful I get to be part of two such staples of the Dallas community.” B ell before she started working at Children’s, Victoria England, pictured below with daughter, Patricia, left, loved the parade. England, who is the project director for Magnet at Children’s, has been a hospital employee for nine years, though she began volunteering as a bleacher host at the parade 11 years ago. The parade has been a wonderful way to kick off the holiday season around the England household for more than a decade now, she said. England’s enthusiasm has been so infectious that her 17-year-old daughter, Patricia, decided to volunteer this year as well. England says the best thing about being involved with the parade is the chance to see so many healthy and active kids from the community having a wonderful time. “Sometimes it’s great to get out and interact with kids when they’re so energetic and full of life,” she said. “I know we haven’t treated all of them at Children’s, but they always remind me of why I entered this line of work to begin with.” W leven-year-old Gemma McLarty, left, was excited when she learned that she’d be making her parade debut by riding in a brand new Maserati. However, the real surprise turned out to be who would be making his parade debut alongside her. Jack the Rabbit, the Children’s mascot, joined Gemma, a lifelong cystic fibrosis patient at Children’s, as she rode down Commerce Street. “Ohmigosh, it was so awesome!” she said. “Now whenever anyone sees Jack the Rabbit, I can say I was part of his very first appearance. No one else will ever be able to say that!” Jack the Rabbit, J.R. for short, hopped into town from the plains of West Texas to spread the word about physical fitness and proper nutrition to patients and families. As the hospital’s mascot, J.R. will appear at Children’s events such as the Cinco de Mayo in Fair Park and the Back to School Strength and Safety Day at NorthPark Center. E ChildTimes ● 17 Children’s patient becomes state’s first pediatric triple organ transplant recipient To Be the First Michael Gonzales, 15, doesn’t mind being the answer to a trivia question. Most medical miracles don’t. Michael is the first pediatric patient in Texas and only the third in the United States to have received liver, heart and kidney transplants according to donor statistics gathered by the United Network of Organ Sharing. UNOS began tracking organ recipients in October 1987 Michael’s first experience with Children’s dates back to 1993 when he was diagnosed with a hepatoblastoma caused by a congenital birth disorder called Beckwith-Wiedemann Syndrome. Hepatoblastoma is the most common malignant liver tumor in early childhood, characterized by an enlarging asymptomatic abdominal mass. Following a year of chemotherapy, transplant surgeons on the medical staff at Children’s replaced Michael’s cancerous liver. At the time, his parents, Connie and Raymundo Gonzales, expected it would be the last time their son would need an organ transplant — but Michael’s health Transplant coordinator Joni Wells with Michael Gonzales, 15, shortly after his heart transplant problems continued. in 2006. Return to Children’s A month after returning to Troy High School from the 2006 winter break, Michael became ill. “We thought it was a regular cold, but when he developed a real bad cough, we took him to the doctor,” Mrs. Gonzales said. Michael was diagnosed with bronchitis, but within two days his symptoms had worsened. “I brought him back to the doctor, and they said he had pneumonia,” Mrs. Gonzales said. “A week of pneumonia treatment at home did nothing, and his doctor, who had been in contact with Children’s, told us he may be experiencing rejection from his liver transplant.” Michael was flown to Children’s Jan. 30, 2006, where doctors diagnosed him with myocarditis, a condition caused by a viral infection causing symptoms of heart failure. The poor blood flow from his heart also impaired his kidney function. Michael was prescribed medications but his condition deteriorated, and quickly it became apparent that a heart transplant was his only hope for survival. 18 ● 2007, Issue 1 Ventricular assist device Due to irrecoverable heart failure, kidney failure and an expected long wait for a combined heart-kidney transplant, Michael’s doctors determined a ventricular assist device was the most appropriate therapy for him until matching donor organs became available. “The VAD is considered a bridge to transplantation, because it helps sustain a patient’s life while awaiting a donor,” said Dr. Joseph Forbess, chief of Cardiothoracic Surgery at Children’s and associate professor of Cardiothoracic Surgery at UT Southwestern. “We had never implanted a VAD in a patient at Children’s, but Michael’s condition dictated he become the hospital’s first recipient.” Dr. Forbess, Dr. Kristine Guleserian, a cardiothoracic surgeon on the medical staff at Children’s and associate professor of Cardiothoracic Surgery at UT Southwestern, and Dr. Dan Meyer, associate professor of Cardiothoracic Surgery at UT Southwestern, surgically implanted a Thoratec left ventricular assist device in Michael on Feb. 23, 2006. “It was scary for us,” Mr. Gonzales said. “They told us he would be on the VAD for about two years before a matching heart and kidney would become available.” Nearly 15 years after receiving his first transplant, Michael again found himself relying on the generosity of another family to save his life. Heart-kidney transplant Remarkably, a match was found just four months later. “On June 5, I was informed that a potential donor for Michael was being crossmatched and that �on paper’ Michael’s body could receive the new organs,” said nurse practitioner Joni Wells, a heart transplant coordinator in Solid Organ Transplant at Children’s. “Following an actual crossmatch, Dr. Joseph Forbess and Dr. Kristine Guleserian talk with Michael just days after he underwent the first left ventricular assist device implant surgery ever performed at Children’s. The VAD sustained Michael’s life for four months while he waited for a transplant match. Ventricular assist devices (VADs) Michael is back lifting weights in his free time, a hobby he enjoyed before he became ill. Michael was taken to the operating room around 4 p.m.” Dr. Forbess and Dr. Guleserian implanted the donor heart around 2 a.m. on June 6. Shortly thereafter, Dr. Thomas Renard, a renal transplant surgeon on the medical staff at Children’s, implanted the donor kidney. “Pediatric heart transplantation is not a rare procedure, but a relatively low number of children receive heart transplants each year,” Dr. Forbess said. “Kidney transplants are about the same, so when you put those two together, it’s pretty rare.” Michael was released on July 3 — less than a month after receiving the double transplant — in time to enjoy the remainder of the summer before his sophomore year relaxing with family and playing basketball with friends. His parents are just happy to have him back home. “I don’t think we could have asked for any better doctors or nurses. This ordeal helped us all bond like family,” Mr. Gonzales said. “The care Michael received down in the ICU and on the floor was just amazing.” A ventricular assist device is designed to assume function for either or both of the heart’s ventricles, the portion of the heart responsible for pumping blood through the lungs and out to the body. VADs have continued to increase in sophistication and efficiency while decreasing in size and risk since their first introduction in the late 1970s. A VAD should be used only in patients who are eligible for a heart transplant or who have severe end-stage congestive heart failure and are not qualified to receive a new heart. In recent years, the surgery has become more common in the pediatric population. The device consists of three major components: • A blood pump, a type of artificial ventricle. • Cannulae (tubes), which connect the blood pump to the heart and vessels. • A dual drive console that powers the blood pump. VADs can be used to support the left side of the heart (LVAD), the right side, (RVAD) or both sides (BiVAD). “I expect that the prevalence of VAD implantations will increase in the future here at Children’s as familiarity with the devices increases and the heart failure population of North Texas continues to rise,” said Dr. Kristine Guleserian, a cardiothoracic surgeon on the medical staff at Children’s and assistant professor of Cardiothoracic Surgery at UT Southwestern. ChildTimes ● 19 Part I of a two-part series Early Discoveries Editor’s note: This is Part I of the story of Ryan and Reece Robertson, following the twins through their diagnoses before birth and their early weeks of life. Look for Part II of their journey in the next ChildTimes magazine (2007, Issue 2), which will tell the story of the boys’ surgeries to correct their heart defects. magine the excitement of learning that you’re pregnant with twins. You automatically start to consider everything in pairs, two car seats, two cribs and twice as many dirty diapers. But one thing you probably wouldn’t consider is the possibility that both babies could be born with the same congenital heart defect. Now you know how Laura and Todd Robertson feel. But thanks to advances in fetal diagnostic capabilities, cardiac specialists on the medical staff at Children’s were prepared to provide specialized care for Ryan and Reece Robertson to sustain their lives until a delicate surgical repair could be performed to correct the congenital heart disorder afflicting them. I Fetal diagnosis During an early ultrasound, Laura’s doctor discovered both babies had a thickened nuchal fold (the skin behind the neck). Babies with abnor- malities tend to accumulate more fluid at the back of their neck during the first trimester, causing this clear space to be larger. Statistics indicate babies with a thick nuchal fold are at a higher risk of having congenital heart defects, Down syndrome or some other chromosomal disorder. “We were thankful when the amniocentesis ruled out the possibility of a chromosomal disorder, but our relief was short lived,” Laura said. “Following the next ultrasound, my doctor recommended we see a cardiologist to receive a fetal echocardiogram. We knew something was wrong.” A fetal echocardiogram is one of the most widely used noninvasive diagnostic tests for diagnosing congenital heart disease. It is conducted on an expectant mother using high-frequency sound waves to look at the heart and major blood vessels of the fetus. The focused study is performed by a pediatric cardiologist and can be used to detect abnormalities of cardiac structure, cardiac rhythm disturbances and disorders of cardiac function. Ryan and Reece were diagnosed with atrioventricular canal defects Children’s offers the one accredited echocardiography laboratory in North Texas Children’s specializes in pediatric cardiac imaging, which includes fetal echocardiograms, to detect abnormalities of cardiac structure, cardiac rhythm disturbances and disorders of cardiac function. The echo lab at Children’s is staffed 24 hours a day, seven days a week by four board-certified pediatric cardiologists who are faculty members at UT Southwestern. More than 150 fetal echocardiograms were performed at Children’s in 2005. The cardiologists on the medical staff at Children’s work in close collaboration with the mother’s doctor to ensure safe delivery and the best possible care for each child. The echo lab has earned accreditation for transthoracic, transesophageal and fetal studies from the Intersocietal Commission for the Accreditation of Echocardiographic Laboratories. The accreditation acknowledges that Children’s is meeting or exceeding the standard of excellence for all types of pediatric echocardiographic studies. Children’s is one of only two pediatric echocardiography labs in Texas accredited by the ICAEL. It is the only one in North Texas. The ICAEL formulates standards for echocardiographic laboratories to promote high quality echocardiographic diagnostic evaluations in the delivery of healthcare. Dr. Catherine Ikemba, right, reviews a chart with Dr. Shannon Blalock, a Cardiology fellow. cardiology with dedicated resources and supporting infrastructure for kids with heart defects.” The Children’s difference Above: Dr. Catherine Ikemba performs a fetal echocardiogram to detect the presence of a cardiac deformity in the fetus. Opposite, above: A fetal echocardiogram reveals the complete atrioventricular canal defect in the heart of Ryan, one of the twins. Right: A post-natal echocardiogram performed on Ryan confirms the diagnosis. Fetal echocardiography was performed on both boys. by a community cardiologist. The fetal echocardiogram revealed a large hole in the center of the heart where the wall between the upper chambers was supposed to join the wall between the lower chambers. Also, the tricuspid and mitral valves that normally separate the heart’s upper and lower chambers had not formed as individual valves. Instead, a single large valve had formed that crosses the defect. The large opening in the center of the heart lets oxygen-rich (red) blood from the lungs on the left side of the heart pass into the heart’s right side. There, the oxygen-rich blood mixes with the oxygen-poor (bluish) venous return from the body and is sent back to the lungs. Thus, blood that already contains oxygen is pumped back to the lungs. This is an inefficient system which causes the heart to enlarge and the lungs to have extra fluid. Most infants with AV canal defects do not grow normally. The extra blood flowing to the lungs causes babies to breathe faster, using up more calories. The high blood pressure also can permanently damage the lungs. Symptoms can present at any time from birth to several months of age. The Robertson twins particularly were unusual in that only one twin is affected in greater than 90 percent of cases of congenital heart disease in identical twins. Usually the other twin has a normal heart. “After learning the diagnosis, Laura and I set out to find the best doctors and facilities to treat Ryan and Reece,” Todd said. “We chose Children’s, because it was important to us to have our boys cared for by a facility that specifically specialized in children’s The Robertsons scheduled a consultation with Dr. Catherine Ikemba, a cardiologist on the medical staff at Children’s and assistant professor of Pediatrics at UT Southwestern. “Dr. Ikemba’s thoroughness, persistence and dedication made us feel confident that Children’s was the right place for us,” Laura said. “She explained the diagnosis in detail and ensured that we understood the treatment plan. We have never encountered a doctor that proactively communicated with us like Dr. Ikemba has — she is one of the main reasons that we chose Children’s.” According to Dr. Ikemba, most of the time babies with heart defects do well in utero. The difficulties come after birth. During pregnancy, the heart’s primary function is to pump. The lungs do not put oxygen into the blood; the placenta does. Dr. Ikemba said in the Robertsons’ case, the purpose of the fetal echocardiograms at Children’s was to prepare the family for life with twins with the same congenital heart defect. “Diagnosis of congenital heart disease or any abnormality prenatally causes mourning of the loss of a normal pregnancy,” Dr. Ikemba said. “Prenatal diagnosis allows families time to progress through the stages of mourning. They are better equipped emotionally at the time of delivery to take care of a baby, or babies in this case, who require extra special attention.” Detection of Reece and Ryan’s congenital heart defects before birth allowed the medical staff at Children’s to establish a plan of care to effectively treat the twins, increasing their chance to live healthy lives. “After reviewing the first fetal echo I conducted on Laura, it was clear that heart surgery would be required during infancy for both children,” Dr. Ikemba said. “As a pediatric cardiologist specializing in fetal echocardiography, my role extends beyond making a correct diagnosis to educating and supporting parents while preparing them for the road that lies ahead.” ChildTimes ● 21 Something Y LOST ou’d expect a lunch bag containing fresh fruit, low-fat yogurt and vegetables to belong to a fitness instructor — not to an 8-year-old. But that’s just what Laura Searle brings to school every day after successfully completing the Dean Foods LEAN (Lifestyle Exercise And Nutrition) Families Program at Children’s. The 12-week program, established through a generous $1.25 million gift from the DEAN Foods Company and administered through the hospital’s Clinical Nutrition department, provides patients and their families intensive weight management therapy while encouraging healthy habits for life. Family develops healthy eating habits after completing Dean Foods LEAN Families Program at Children’s Something GAINED 22 ● 2007, Issue 1 Laura’s doctor, Dr. Joseph A. Hanig, a private practice pediatrician and member of the Children’s medical staff, referred her to Children’s based on Laura’s height, weight and body mass index. The program is open to pediatric patients with a BMI greater than or equal to the 95 percentile for their age. Laura received an initial assessment by a multidisciplinary team consisting of a pediatrician, dietitian, physical therapist, social worker and other support staff. The family then attended 12 weekly group sessions and received frequent phone call reassessments from Tracye Byars, a registered nurse and care coordinator in the program, to evaluate individual physical changes and to track goals. Education During each two-hour classroom session, Laura and her parents worked with a physical therapist and a clinical dietitian to develop healthy habits like reading food labels, getting more exercise and spending less time in front of the television. Byars says the classes helped the Searle family identify behaviors that could trigger overeating or the choosing of unhealthy foods. “The classes show the dramatic differences in grams of fat and calories between eating a healthy, well-balanced meal and a standard meal available at a casual dining restaurant,” Byars said. “Most families are shocked when they see the difference.” The Searle family was encouraged to keep a food log for the registered dietitian to review and provide suggestions. The logs helped the Searle family modify their food selections and develop more healthy eating patterns. “When you keep track of what you eat and are held accountable for it, you can see how every little thing really adds up,” Mrs. Searle said. Disease management services at Children’s Through education and pro-active self-management, disease management services at Children’s have helped decrease healthcare costs and improve the quality of life for individuals with chronic conditions such as being overweight, diabetes and asthma. The Dean Foods LEAN program is just one of the hospital’s efforts. Asthma Management Opposite: The Searle family, including from left, Maria Claudia, Laura, Edward and Thomas, during a recent shopping trip. Program The Asthma Management Right: From left, Renee Robinson and her son, 9-year-old patient Keith Robinson, learn how to set appropriate goals from Stephanie Denlar, Physical Therapy aide. Program is an intensive sixmonth management pro- Below: Alice Anderson, physical therapist, leads LEAN family participants in exercise routines during one of the classes. gram that provides education to children diagnosed with asthma and their families. All patients receive two home visits and bi-weekly telephone checkups by a registered nurse. This allows for thorough one-on-one education and the evaluation of treatment measures. The Children’s Asthma Management Program has been awarded certification by The Joint Commission for Disease-Specific Care Programs, the first program in Texas to receive such recognition. Diabetes Education Program The Children’s Diabetes Education Program provides progressive, advanced quality education and management for children with diabetes and Future outlook The program’s family-centered approach to lifestyle modification proved successful for the Searle family. The entire family now engages in a healthier way of life thanks to what they learned. Results of a recent lipid screen with Laura’s pediatrician show her cholesterol level went down from 189 (a little above normal) to 120 (normal). Her level of low-density lipoprotein also decreased significantly from 120 to 80. As an added bonus, Laura and her father each lost three pounds while her mother lost nine. Byars credits the family’s achievement to their willingness to set attainable goals. “The Searle family appreciated the support we provided,” Byars said. “The accountability and goals review on a weekly basis really kept them striving to accomplish their objective.” The Searle family says they will continue eating well, thanks to what they learned in the program. “Before taking the class, we didn’t have a plan of action, but now we know what it takes to be healthy,” Mrs. Searle said. their families. By using a team approach, Children’s enlists a variety of healthcare specialists to address the needs of these patients. The program offers classes for children newly diagnosed with Type 1 and Type 2 diabetes, intensive insulin management, pump training and management and a unique program for patients who are new to the clinic. Children’s continues to receive recognition of the Diabetes Education Program by the American Diabetes Association for the center’s selfmanagement program, one of three pediatric hospitals recognized in the state of Texas. ChildTimes ● 23 Community News Children’s Barnyard a family favorite at State Fair, �Clean Team’ encourages good hygiene fter a one-year hiatus, the Children’s Barnyard exhibit returned to the State Fair of Texas in 2006 — manned by hospital volunteers and a live gallery of more than 20 types of animals including pigs, llamas, kangaroos and a giraffe. The first time Kristie Abel volunteered at the Children’s Barnyard at the State Fair of Texas, she thought she’d died and gone to “hog heaven” — literally. “I remember how in awe the kids were of the massive pig and her babies,” said Abel, a respiratory care therapist at Children’s. “I couldn’t help but smile when I saw their A curiosity. I loved that the atmosphere at the fair was so festive, and I planned on working at the Barnyard every year from then on out.” One reason why the Barnyard is so popular with young fair-goers is because it’s a place where they can get up close to the animals — close enough to touch. That’s also one reason why the Children’s Clean Team was on hand distributing hand wipes and encouraging everyone to wash their hands at the Barnyard’s new sanitation stations. Brooke Clark, marketing events manager at Children’s, said volunteers know the hospital’s mission to make life better for children extends beyond the hospital’s walls — which is why they gave away more than 80,000 hand wipes during the fair. Clark said the contributions of Abel and the more than 425 other employee volunteers are what made this year’s Barnyard such a success. “Our volunteers are the lifeblood of so many of the community events we present,” she said. “Year after year the Children’s Barnyard is a favorite with kids and their families, and I attribute that to the upbeat atmosphere our volunteers create out there.” From left, in yellow, Children’s Barnyard volunteers Lawrence Tellez and hospital employees Faith Lono-Tellez and Kristie Abel hand out sanitary hand wipes at the Children’s Barnyard during the Texas State Fair. Children’s joins Dallas Arboretum for Dallas Blooms Autumn and Tiny Tots Tuesdays More than 130,000 people attended the 22nd annual Dallas Blooms Autumn festival from Sept. 26 to Oct. 24 at the Dallas Arboretum. During the festival, Children’s presented the second rendition of Tiny Tots Tuesdays, an educational event for families with young children. Families were treated to a Tiny Tot Ballet performance by the Janie Christie School of Dance and “Tote Your Tot,” a stroller aerobics class. Children also had the opportunity to participate in crafts, a petting zoo, face-painting, storytelling and wagon rides. James French Photography offered families professional-quality pictures of their day at the Arboretum. The goal of event organizers was to give parents and kids insight into 24 ● 2007, Issue 1 100,000 fall-blooming flowers, including salvia, coleus, ornamental grasses and thousands of richly colored chrysanthemums. Guests also are treated to musical performances throughout the Gardens, plus the hospitality of the Arboretum’s Trammel Crow Visitor’s Education Pavilion dining area, gift shop and other amenities. the various outdoor activities that can be both educational and fun, said Brooke Clark, marketing events manager at Children’s. “Children’s was honored to be a part of Tiny Tots Tuesdays at the Arboretum, providing interesting activities for children,” she said. “The Dallas Arboretum is a wonderful place for adults and children to spend a day in a beautiful natural environment.” Dallas Blooms is a celebration of autumn at the Dallas Arboretum, which is considered one of top floral display gardens From left, Micah Crissey with children Jake, 1, and Olivia, in North America. In 3, plant pumpkin seeds in flower pots at the Dallas the fall, visitors enjoy Arboretum as part of Children’s Tiny Tots Tuesdays. Hospital, Heard Museum team to present life-like world of dinosaurs hen it comes to the physical well-being of the children of the Metroplex, no place can offer the quality of service that Children’s can. And when it comes to stimulating the imaginations of kids in the area, no place can provide the sense of awe that can be found at the Heard Natural Science Museum and Wildlife Sanctuary in McKinney. It was only fitting that these two institutions team up to provide a glimpse into what the earth was like 100 million years ago at the Dinosaurs Alive! exhibit at the Heard. The exhibit featured seven life-sized animatronic dinosaurs, including a TRex, Ceratosaurus, Baryonyx, Megalosaurus, Cryolophosaurus, Deinonychus and an Allosaurus, which was presented by Children’s. Visitors walked along the trails and Visitors observe the Children’s-sponsored were able to imagine what it might Allosaurus at the Dinosaurs Alive! exhibit at have been like to live during the the Heard Natural Science Museum and Wildlife Sanctuary in McKinney. dinosaur era while seeing how their favorite dinosaurs moved and hearing how they roared. Children’s also helped distribute dinosaur education booklets that gave children the opportunity to learn more indepth dinosaur facts. “Our mission is to bring nature and people together to discover, enjoy, experience, preserve and restore our priceless environment,” said Mark Armentrout, interim executive director of the Heard. “The participation of Children’s means that we can move ever closer to that accomplishment.” W Children’s employees help celebrate Dallas Opera’s 50th anniversary The Dallas Opera hosted a fun-filled afternoon of music, games and new experiences for Dallas-area families in November at the first ever Dallas Opera Cartoon Carnival at the Music Hall in Fair Park. Presented by Children’s and John Eagle Dealerships, the Cartoon Carnival centered on a 30-minute concert of opera-related favorites featured in numerous popular cartoons over the years. The concert was conducted by Maestro Anthony Barrese, assistant conductor of The Dallas Opera. Radio Disney also helped lead the festivities that included the popular Instrument Petting Zoo, backstage tours, Dress Like an Opera Star, a lively cooking demonstration by Whole Foods and door prizes. Thirty employee volunteers from Children’s pitched in to staff all of the interactive activity booths for kids, providing everything from Band-Aid art projects to opera karaoke. Dallas Opera Marketing Director Jennifer Schuder said the cartoon carnival served as a kick-off for the opera’s upcoming 50th anniversary celebration, and it was only fitting that Children’s, another historic Dallas institution, be involved. Hospital leads efforts to insure eligible children This fall, Children’s led a community enrollment drive for the Children’s Health Insurance Program and Children’s Medicaid at four area YWCA facilities. More than 100 volunteers processed 585 applications or renewals at the drive, which represented coverage for 1,755 children. The state’s application process for CHIP and Children’s Medicaid recently has become more complicated, requiring families to provide more substantial documentation. The more variegated process has resulted in declining participation; CHIP enrollment has dropped more than 37 percent since 2003, and Medicaid numbers fell by more than 118,000 children in 2006. Spreading the message about the programs is critical, as families must re-enroll every six months once becoming eligible for assistance. Radio advertisements and 46 billboards promoted the drive, and community support branched out through schools, churches, parks and recreation facilities and local nonprofit organizations. “Every day, the Advocacy staff work with families who have uninsured children,” said Julia Easley, director of Advocacy at Children’s. “CHIP and Children’s Medicaid are critical health programs. Together, they provide coverage for more than 2.1 million Texas children.” Access to proper healthcare for children remains a concern, however. About 1.4 million children living in Texas have no health insurance — the most in the nation — even though more than half of those children are eligible for coverage. The enrollment drive aims to get every eligible child in Texas — more than 700,000 children — enrolled in Medicaid or CHIP. Children’s is committed to doing its part to make that a reality. If you want more information about CHIP and children’s health coverage, please visit www.childrenshealthcampaign.org. Children’s employee volunteers Anbra Pherigo, left, and Brenda Smith, right, help visitors to the Dallas Opera Cartoon Carnival with Band-Aid® art. “The party starts here and now and the excitement will continue to build as we prepare to mark the anniversary of the legendary concert that started it all,” Schuder said. “We are honored that Children’s Medical Center would help us as we say �thank you’ to the enthusiastic patrons who have made The Dallas Opera an arts and entertainment destination for half a century.” ChildTimes ● 25 Wenning inspired by, places confidence in caregivers at Children’s N Volunteer News ancy Eisenhardt Wenning has seen up close the good work Children’s employees and medical staff provide on a daily basis. The daughter of a close friend was diagnosed a few years ago with a blood-related cancer — one that is extremely rare in adults and almost unheard of in children. Gabriella was 12 when she passed away in June 2003, not long before her 13th birthday. It didn’t take Wenning long to decide she wanted to join the Children’s team as a volunteer. “I saw first-hand the phenomenal nurses and doctors that supported that family and child,” Wenning said. “I said that I wanted to give back if nothing else than to thank those individuals who were there for our friend and her daughter.” A trial consultant by trade, Wenning comes to the hospital on the weekends and has accumulated more than 50 hours in just a few months. Volunteering at Children’s also helps her put her master’s degree in educational psychology to good use. Her caring nature is simply an extension of what Wenning witnesses every time she walks through the doors at Children’s. Nancy Wenning The hospital is a facility she intends to keep close to her heart for a long while. “Whenever I get ill — I don’t care how old I am — I want to be admitted to Children’s,” Wenning said. “The staff is nothing less than superb.” Volunteering helps prepare teen for career in pediatric healthcare Though only a sophomore in high school, Courtney Ludwig is fairly certain she wants to have a career in pediatric healthcare. Doing so would mean following the lead of her father, Mike, a clinical manager at Children’s. fun to be around them even more.” Being a home-school student provides Courtney the opportunity to spend a great deal of time at the hospital. She has amassed more than 100 hours of service in the past year — an impressive feat given what area to specialize in, Courtney, that Children’s only requires its teenage volunteers 15, said her time as a volunteer at to serve 50 hours a year. Children’s exposes her to many Courtney has been a volunteer for the past year and currently works at the concierge desk in the Train Lobby. She can begin training classes to work with children when she turns 16. 26 ● 2007, Issue 1 the future,” she said. “I love the kids, and it will be And since she isn’t exactly sure facets of hospital life. Courtney Ludwig lets me make sure that’s what I really want to do in “Hanging around the hospital so much, it Mike Ludwig had no apprehensions about Courtney joining the Children’s team — he says it encourages him to see his daughter embrace the hospital. “It’s always good to have someone else down here to help out,” Ludwig said. “And Courtney has a great positive attitude, which makes working with kids so natural to her.” Retiree misses patients; returns to hospital as volunteer After nearly 10 years of service as a dedicated employee in the ARCH Center at Children’s and as a researcher at UT Southwestern, Jackie Hickman decided it was time to retire. “I thought I could make a seamless transition into retirement,” she said. “But I soon realized that I missed the kids at the Previous experiences at Children’s helps Pond relate to patients argaret Pond has twice been a patient at Children’s. Her first M visit was as a first-grader, but she can’t seem to remember what the surgery was for. The latest came seven years ago when she was diagnosed with juvenile diabetes. The memories are lasting, she said, and the most vivid ones are of spending extended periods of time in the atrium-level playroom. hospital way too much.” Pond has made numerous trips back to the hospital during the past After retiring in January 2005, Hickman was back at Children’s year — but not for any treatments. She has been volunteering as a volunteering by September of the same year. In fact, she sitter, and Pond, 18, said her previous experiences at Children’s help picked up right where she left off by returning to the ARCH put matters into perspective. Center to help foster the Reach Out and Read program she had helped create during her tenure as an employee. “I can relate to them on some level,” said Pond, a senior at Trinity Christian Academy-Addison. “Meeting so many doctors a day The Reach Out and Read program utilizes the talents of can be a lot for a little child. Hickman and two other volunteers to model good reading But since I’ve been in their habits in the ARCH Center waiting room. Hickman said she shoes before, I let them hopes to enlighten children on the thrill books can provide. know things can and will get better. “Doctors suggest parents spend at least 15 minutes a day “I have a heart for each reading to their children or modeling good reading habits in and every one of them.” front of them,” she said. “I love seeing the kids faces’ light up Pond has a passion for when we share our favorite stories with them.” volunteerism. Besides Cassie Collins, director of Volunteer Services, said Hickman, Children’s, she volunteers who already has donated more than 280 hours of her time, once a week during her is representative of a good number of former employees who lunch and study hall at St. leave Children’s only to find their hearts calling them back. Timothy Academy — a school for children with learning “This place has a way of bringing people under its spell,” differences — and also Collins said. “In Volunteer Services, we have former spends time at Anne Frank employees return all the time, some as little as a few weeks Elementary School in after they leave the hospital.” Dallas. Margaret Pond accompanies a patient on a hallway stroll. When she enrolls at the University of Oklahoma in the fall, Pond anticipates beginning a pre-med study track. She said she hopes to latch on to some volunteer activity at a hospital there — preferably in pediatrics. Jackie Hickman ChildTimes ● 27 OUR LEADERSHIP Children’s Medical Center Dallas is a not-for-profit pediatric hospital governed by a community volunteer board jointly appointed by Children’s Health Services of Texas, Baylor Health Care System and Texas Health Resources. Children’s is affiliated with The University of Texas Southwestern Medical Center at Dallas and is UT Southwestern’s primary pediatric teaching hospital. Children’s is accredited by the Joint Commission on Accreditation of Healthcare Organizations and approved by the Council of Medical Education of the American Medical Association and the American Dental Association. Children’s also is accredited by a variety of educational programs in related healthcare fields. Children’s is a member of the American Hospital Association, the Texas Hospital Association, the Children’s Hospital Association of Texas, the National Association of Children’s Hospitals and Related Institutions and the Council of Teaching Hospitals. Children’s Medical Center of Dallas Board of Directors Senior Directors Clara C. Bahner Julian De La Rosa DIRECTORS Chairman John L. Adams MEDICAL STAFF OFFICERS Immediate Past President William A. Scott, M.D., M.S. Tom Baker Robert Chereck Michael Dardick Christopher J. Durovich Sandra Estess Kathleen Gibson Richard Knight, Jr. J. Marc Myers Elaine Nelson Marcia Page President Michael E. Brown, M.D. EX-OFFICIO MEMBERS Joel Allison M. Douglas Baker, M.D. David W. Biegler Michael Brown, M.D. Dan Chapman Robert Foglia, M.D. Douglas Hawthorne Zora Rogers, M.D. Thomas Zellers, M.D. INVITED GUESTS Ron Anderson, M.D. George Lister, M.D. Willis Maddrey, M.D. Gifford Touchstone Kern Wildenthal, M.D., PhD. ASSOCIATES BOARD Peter Altabef Katherine Crow Robert M. Farrell Lois Finkelman Monte E. Ford Joyce Houlihan Thomas Leppert Albert Niemi, Ph.D. Robert Olmsted, Jr. Richard L. Rogers Marcos Ronquillo John Field Scovell Florence Shapiro Patrick Shelby SENIOR LEADERSHIP President and CEO Christopher J. Durovich Executive Vice President of Development T.W. Hudson Akin Senior Vice Presidents Julio Pérez Fontán, M.D. James W. Herring Douglas G. Hock Patricia U. Winning Vice Presidents Christopher J. Dougherty Brett Daniel Lee Fiona Howard Levy, M.D. Anne E. Long, RN, JD Elizabeth Field MacKay Karen Meador, M.D. Louis C. Saksen Chief Nursing Officer Mary Stowe, RN, MSN Interim Chief Financial Officer Nancy Templin Chief Medical Officer Thomas Zellers, M.D. Director of Medical Services M. Douglas Baker, M.D. Director of Surgical Services Robert Foglia, M.D. 28 ● 2007, Issue 1 President-Elect Zora R. Rogers, M.D. Surgical Representative at Large 2007-2008 David Weakley, M.D. Medical Representative at Large 2007-2008 Joe Neely, M.D. Surgical Representative at Large 2006-2007 Steven Leonard, M.D. Medical Representative at Large 2006-2007 Angela Mihalic, M.D. Secretary/Treasurer Pam Okada, M.D. MEDICAL EXECUTIVE COMMITTEE Chairman Thomas Zellers, M.D. Douglas Baker, M.D. Michael Brown, M.D. Richard Daniel, M.D. Robert Foglia, M.D. Nilda Garcia, M.D. Andrew Gelfand, M.D. Steven Leonard, M.D. George Lister, M.D. Angela Mihalic, M.D. Francis C. Morriss, M.D. William A. Scott, M.D., M.S. Paul Sheeran, M.D. Beverly Rogers, M.D. Nancy K. Rollins, M.D. Carolyn Wilson, D.D.S. MEDICAL EXECUTIVE COMMITTEE EX-OFFICIO MEMBERS Christopher J. Durovich Roy Heyne, M.D. Douglas G. Hock Mary Stowe, RN, MSN Michael Chang, M.D. Ami Dharia, M.D. Ashleigh Richards, M.D. ADMINISTRATIVE MEMBERS James W. Herring Anne E. Long, RN, JD Fiona Howard Levy, M.D. Anne Roberts, CPMSM Children’s Health Services of Texas HONORARY LIFE MEMBERS Gene H. Bishop Lloyd Bowles, Sr. Rawles Fulgham Theodore P. Votteler, M.D. Joel T. Williams, III DIRECTORS Chairman David W. Biegler John L. Adams Paul Bass Dan Chapman Ann Goddard Corrigan Christopher J. Durovich Sandra Estess Randi Halsell Richard Knight, Jr. P. Mike McCullough Debbie Scripps Barbara Stuart Gifford Touchstone Darrell W. Wootton EX-OFFICIO MEMBERS Dan Chapman Joel T. Williams Thomas Zellers, M.D. Children’s Medical Center Foundation Board of Trustees TRUSTEES EMERITUS James J. Farnsworth H. Grady Jordan, Sr. Sarah M. Seay TRUSTEES Chairman Dan Chapman Marilyn Augur Martha Lou Beaird Samuel J. Beard David Beuerlein Sheila Beuerlein Cordelia Boone Charles (Chet) Boortz Lloyd S. Bowles, Jr. Lloyd S. Bowles, Sr. Kitty Boyle Ben Brooks Kathy Brooks Susan E. Brown Shell Burford Lance Byrd Barbara Mallory Caraway Bill Carter Dan Chapman Ann Goddard Corrigan Marie Crowe R. Brooks Cullum, Jr. Sissy Cullum Scott Dabney Jon Dahlander Ann Delatour David H. Eisenberg Sandra Estess Lance Etcheverry Susan Farris Steve Folsom Gerald J. Ford Kandace Garvey Jon Gaulding Kenn George Linda Gibbons James B. Goodson Toppy Goolsby Leslie Greco Steven Gruber Cindy M. Gummer Todd Hagemeier Randi Halsell Juli Harrison Susan Hoag Denny Holman Ward Hunt Gene Jones Ken Klaveness Richard Knight, Jr. Tracey Kozmetsky C.S. Lee Anne Logan Dale Hawkins Long George Mason Karen Matthews Albert McClendon Jill McClung P. Mike McCullough Kimberly McDavid Ben David McDavid, Jr. Gail McDonald John P. McNamara Melanie Medanich Jerry Meyer Harold Montgomery Vikki Moody Dian Moore Ginny Moore H. Leslie Moore, M.D. Robert Morgan, D.D.S. Randall Muck John B. Muns Burk Murchison Jan Myers Hisashi Nikaidoh, M.D. Lydia Novakov Crickett Rollins Olmsted Frank O’Neil Stephen C. Owen Teresa Parravano Chris Patrick Pamela Dealey Petty John T. Pickens Claude Prestidge, M.D. Deborah Price, Au.D. Debbie Raynor Ann Duckett Reed Raymond Reed, Ph.D. Richard L. Rogers Steven M. Rudner Mardie Schoellkopf Betty Schultz John Field Scovell Debbie Scripps Ric Scripps John R. Sears, Jr. Mary Louise Sinclair Frank Sloan Sandra Snyder Bob Stegall Sally Seay Stout Barbara Stuart Smokey Swenson Mike Tanner Burton Tansky Betty Terrell Richard (Dick) Terrell John P. Thompson, Jr. Gifford Touchstone Robert Webb Suzy Welfelt Jimmy Westcott Joel T. Williams, III Sue Wills Tracy Wolstencroft Laura M. Woodall Darrell W. Wootton Sharon Worrell Terry Worrell Donald Zale EX-OFFICIO MEMBERS Jill Bee David W. Biegler Kathryn Biggers Christopher J. Durovich Cindy McGeogh Rosalyn Parker Jamie Singer Jill & Chris Willis Foundation Executive Committee Dallas Mavericks guard Greg Buckner talks with Esther Knoll, 17, and gives her an autographed Dallas Mavericks basketball. Buckner visited Children’s on Dec. 9 to hand out autographed basketballs and visit with a few patients. Dallas Stars assistant captain Mike Modano talks hockey with 8-year-old Luis Palencia, a self-proclaimed �sports nut.’ Members of the Dallas Stars visited patients at Children’s on Dec. 11 as part of their annual holiday activities. Whitney Lasiter designed a trivet that was distributed to Children’s board members and trustees as a thank-you gift for their volunteer service. Lasiter has had two heart procedures at Children’s — one when she was 4 months old, the other at 4 1/2 years old. From left, Dr. Ted Votteler, former chief of Surgery at Children’s; Dr. Alan Flake, professor of Surgery and Obstetrics & Gynecology at the University of Pennsylvania School of Medicine; Dr. George Lister, chief of Pediatrics at Children’s and chairman of the department of Pediatrics at UT Southwestern; and Dr. Robert Foglia, chief of Pediatric Surgery at Children’s and UT Southwestern, during the inaugural Theodore P. Votteler lectureship on Aug. 30. The lectureship was established in 2006 in honor of Dr. Votteler with the goal of bringing innovative pediatric surgical concepts to North Texas. Dr. Votteler, who retired from Children’s in 2001 after more than 50 years of practicing medicine, is notable for having separated seven sets of conjoined twins in his career, possibly more than any other surgeon in the country. Dr. Flake was the guest speaker for the inaugural lecture. Nonprofit Org. 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