American Family Children’s Hospital A n n u a l Re p o r t 2 0 0 7 ON THE COVER: Five-year-old Sora Baker of Janesville enjoys playing in the leaves and soaking up some autumn sunshine. Sora has been treated for cystic fibrosis at the American Family Children’s Hospital since being diagnosed as a newborn. Now in kindergarten, Sora is a delightful little girl who especially loves to play “make believe.” Building Pride Dear Friends, Over the last several weeks, I spent some time reflecting on our accomplishments in 2007 and a theme began to emerge. It is best captured by the word “pride.” I see pride come to life in the eyes of every patient, family and visitor when they see the world-class American Family Children’s Hospital for the first time. Together, we achieved our dream of building this amazing, award-winning facility in 2007, and we could not have done it without your unyielding support. I am proud to be a member of such a caring and generous community—one that appreciates the needs of children and families enough to give its time and money toward the creation of a hospital unlike anything seen before in the region. The generosity of our community—which spans the entire state of Wisconsin—reflects a giving culture that values every child from the small to the tall. When school kids bring in their piggy banks, lemonade sale proceeds or dedicate their birthday gifts to the children’s hospital, one cannot help but feel an enormous sense of pride. I am also proud of our staff that tirelessly comes to work every day to provide the very best care for our children. I am blessed to work with a large group of professionals who are so completely committed to our mission. Last but certainly not least, I am proud of our patients and their families who fight every day to overcome the enormous challenges that life has put before them. They not only fight to heal themselves but, in so doing, find the time and energy to care about others who have to face similar or other obstacles. We value their advocacy and encourage them to continue to speak up and improve the care and service we provide at the American Family Children’s Hospital. I am pleased to share the stories of just a few of our patients with you in this 2007 Annual Report. Every child that enters our doors touches our hearts, and I believe these stories will touch yours. I am proud to have served as interim vice president of such a remarkable organization. Once again, thank you for your commitment to the American Family Children’s Hospital. Sincerely, Jennifer Brazelton Interim Vice President - 2007 Kade Vance 2 After A life-threatening car crash Kade loves life on the farm W atching 10-year-old Kade Vance putter around the family farm, one almost sees a Norman Rockwell painting come to life. Kade was born to roam the farm, and it is hard to imagine him growing up in any other environment. A week before his 7th birthday, however, Kade’s life hung in the balance after being gravely injured in a horrible car crash along with his sister, Karsen, and their dad, Dave. On a drizzly, November afternoon in 2004, Dave was driving the two kids from their rural Delavan farm to Janesville in search of a birthday present for their mom, Jill. Just before reaching a hilly, obstructed intersection, another driver heading south at 70 mph came out of nowhere, blew through the stop sign and smashed straight into the Vance’s car. “He is truly a miracle boy who brings so much joy to everyone.” —Lynne Sears, RN, MS Pediatric Trauma Coordinator Immediately after the Vance’s car turned end-over-end repeatedly, Kade was thrown about 40 feet from the vehicle. Dave and Karsen, who also would sustain severe injuries, remained in the car before it finally came to a stop. After an initial stop at Mercy Hospital in Janesville, Kade was rushed by ambulance to what is now the American Family Children’s Hospital in Madison. “I was convinced he was going to die on the way to Madison,” recalls Jill. “When we got there, I remember someone sat me down and shut the door. I said, �You don’t have to shut the door to tell me that he died.’” Kade refused to succumb, however. A few hours later, Pediatric Trauma Coordinator Lynne Sears, RN, MS, put her hands on Jill’s shoulders and looked her straight in the eye. “He is not going to die!” Not quite sure if she could believe Sears’ assurance, Jill told herself she could handle any outcome short of planning her son’s funeral. Kade’s injury report was truly numbing: a severe closed head injury, bruising in his lungs and liver, facial lacerations and a neck injury. He was on life support for the first two weeks. Slowly, Kade began to understand what he heard, but it would be months before he could speak or eat food by mouth. He would not start walking again until last summer—some 30 months after the crash. Supported by an incredibly strong family and Children’s Hospital specialists in trauma, neurosurgery, physical/occupational/speech therapies and rehabilitation services, Kade has made an amazing recovery. “Kade has come a long way from those first weeks and continues to improve,” Sears says. “He is truly a miracle boy who brings so much joy to everyone.” Kade’s mom, Jill, agrees. “Despite everything,” she says, “we have been very fortunate. It has also made us better people because we don’t take things for granted.” New program eases stress for children in the E.R. Michael Kim, MD, is passionate about kids. Hired in October 2007 as Director of UW Health Pediatric Emergency Medicine, Dr. Kim is the first American Family Children’s Hospital physician who is trained and board certified in pediatric emergency medicine. “We see about 7,000 children a year in our Emergency Department,” Kim says. “With specialists on staff trained in pediatric emergency medicine, we can ease some of the distress that any child or family encounters by coming through the E.R. doors.” Kim, whose research focuses on pain management, is excited about growing the program and anticipates hiring additional pediatric emergency medicine physicians in the near future. 3 Hudson LePine 4 $670,000 raised during radiothon Hudson’s family gets new outlook W hen Madison’s most popular morning radio team— Connie and Fish of Z104—began hosting the 39-hour Cure Kids Cancer Radiothon in 2005, childhood cancer was not something Connie or Fish had previously spent much time thinking about. “We both love kids, but neither of us are parents,” says Connie. “When we started talking to these kids and their families on the air about what they have been through and what they deal with, it really opened our eyes—not only about childhood cancer, but about how much Fish and I could make a difference.” What a difference it has been! More than $670,000 was raised from listeners during the three-day 2007 Radiothon to help support patients and families through better clinic facilities and more pediatric cancer research at the UW. “It really is an awesome experience,” adds Fish. “We give everything we have for three full days and yet Connie and I still can’t begin to imagine what these beautiful kids and their moms, dads, brothers and sisters go through in the hospital and at home.” Elizabeth, her husband Andy, and Hudson spent that evening at home, waiting. “I remember crying in the car for those families on the radio and just seven hours later, we became one of those families.” —Elizabeth LePine, Mother “It was 9:22 p.m. when the phone rang,” Elizabeth says. “I answered it and our doctor said, �Mrs. LePine, Hudson’s blood work came back and we think he might have leukemia. I’m sorry to tell you this over the phone, but you need to come to the hospital right away.’” A diagnosis of acute lymphoblastic leukemia was confirmed the next day. “I remember crying in the car for those families on the radio,” says Elizabeth, “and just seven hours later, we became one of those families.” Consider the story of one mom, Elizabeth LePine of Sun Prairie. Hudson’s cancer treatment will continue until 2009, when he begins kindergarten. He also has received extensive treatment for a blood clot on his brain. Despite it all, his prognosis is good. “My 3-year-old son, Hudson, had fractured his leg in early April 2006,” Elizabeth remembers. “A few weeks later, a fever started coming and going, which was followed by an ear infection. Another week passed, and he suddenly started tripping in the yard and not putting any weight on his leg. “Hudson has been through a lot, but he has made an excellent recovery and is doing well,” says Kenneth De Santes, MD, Hudson’s UW Health oncologist. “He is a very sweet and smart little boy and has been a pleasure to care for.” “That afternoon,” she says, “I’m driving Hudson to the clinic, with the Z104 Radiothon on in the car. They repeated X-rays and blood tests, which just one month earlier had seemed to rule out cancer.” Kristina’s star shines forever When 9-year-old Kristina Schultz of Marshall, Wisconsin, passed away in April 2007 following a six-year fight with leukemia, Z104’s Connie and Fish knew right away what had to be done. “Fish and I fell in love with Kristina and her family when we first met the Schultzes back in 2005,” says Connie. “When she passed away just a month before last year’s Radiothon, there was no choice but to dedicate the 2007 Radiothon to Kristina.” Despite undergoing two bone marrow transplants, years of chemotherapy and more hospitalizations than anyone could remember, Kristina’s focus was always on others. “She wanted to use her experience in ways that would help heal other people,” says her dad, Daryl. “In 2006, for example, she helped launch Caps for the Cure, a program that raised money for the hospital by allowing fellow students the right to wear a hat to school for one dollar. Nearly $14,000 was raised, and all of the proceeds supported her fellow childhood cancer patients and families.” 5 Josselin Ceballos de Santiago 6 “She can’t stop moving!” Josselin puts the fun in fitness A ngelica Ceballos of Madison beams with pride as she chats up a visitor about her once sedentary, but now very active 7-year-old daughter Josselin. “She used to eat a lot of cookies,” Angelica says in Spanish while watching Josselin chase a soccer ball around a Madison school yard. “Now, she eats fruits and vegetables and can’t stop moving! She plays soccer, runs, dances—and she doesn’t get tired. She also has more confidence.” One of more than 400 patients who attends the UW Health Pediatric Fitness Clinic on Madison’s West Side, Josselin illustrates how much progress a child can make toward achieving a healthier lifestyle. “Josselin is a wonderful child who really has fun while becoming more fit,” says Sue Peterson, MS, exercise physiologist. “She also has a very committed family that is so proud of her. With more activity and a healthier diet, she has grown taller while maintaining her weight.” Aaron Carrel, MD, a UW Health pediatric endocrinologist and medical director of the Pediatric Fitness Clinic, says Josselin is one example of what the clinic can do for children who might be at risk of becoming overweight as they grow into adulthood. “There are all kinds of kids like Josselin who just need a little direction to help achieve a healthier lifestyle,” Carrel says. “She has really found the fun in fitness, and her family’s support is truly invaluable.” A leading national researcher in pediatric fitness, Carrel was not willing to stand idly by and watch a generation of children reach epidemic proportions of obesity. “It is no exaggeration to call this a crisis,” Carrel says. “We have 25 million kids in this country who are either obese or overweight. If we don’t turn these kids around, we will have staggering numbers of young adults at great risk of heart disease or type 2 diabetes.” As the primary investigator of a published study that linked improved cardiovascular fitness and greater insulin sensitivity to a lifestyle approach to physical education, Carrel believes there are plenty of ways to recapture kids who have been turned off by traditional gym classes. “She has really found the fun in fitness, and her family’s support is truly invaluable.” —Aaron Carrel, MD, Medical Director, UW Health Pediatric Fitness Clinic “We all remember the boys and girls who never got picked for team sports,” Carrel says. “Our study demonstrated that individual life sports such as bicycling, walking or snowshoeing can strike a chord with kids who otherwise might tune out and become serious risks for irreversible obesity.” Carrel and his team are now working with the Wisconsin Department of Public Instruction and local school districts in hopes of measuring students’ fitness and introducing a lifestyle approach to physical education. “Schools are clearly the best place to try and reach kids,” Carrel says. “It is incredibly fulfilling to get them hooked on fitness before they graduate into the adult world, where old habits die hard.” Pediatric fitness clinic expansion eyed Getting kids hooked on fitness requires more than desire. It also means having the physical space to support a state-of-the-art pediatric fitness clinic with growing demand. “We are thrilled to be serving more kids and families,” says Paul Montague, coordinator for the Wisconsin Pediatric Fitness Initiative, “but we have a critical need for additional clinic space, a new children’s fitness center, and a pediatric exercise laboratory.” Accordingly, a $1.6 million fundraising campaign has been launched to expand the existing Pediatric Fitness Clinic facility, allowing for increased programming and capacity. More information is available by contacting Montague at (608) 890-9315 or pmontague@uwhealth.org or Nancy Francisco-Welke at (608) 263-5960 or nancyf@uwfoundation.wisc.edu. 7 Jay Haraldson 8 Jay tackles cancer one yard at a time UW Coach Bielema among his biggest fans J ay Haraldson of Sun Prairie may have only been 5 years old when cancer entered his life, but he was quite certain of one thing: his tumor might visit, but it would not stay. “Jay loves life and loves the Badgers,” Bielema says. “He just keeps moving forward.” Not long after being diagnosed in 2001 with a soft-tissue cancer on his jaw known as rhabdomyosarcoma, Jay was waiting with his mother, Sharon, to have a CT scan when he noticed a little girl who had two noticeable lumps on her jaw. Indeed, moving forward is something Jay does better than many around him. Only one hour after being infused with chemotherapy, Jay surprised his dad, Joel, by walking the entire 1.5-mile trip back from Camp Randall Stadium to the Children’s Hospital following a football game in 2006. “I have one bump and look, Mom, she has two bumps,” Jay said rather matter-of-factly. “I just know they’re going to get better by our birthdays.” “Jay loves life and loves the Badgers. He just keeps moving forward.” Despite a recurrence of his disease in the spring of 2006 just before turning 11, Jay is now 12 and doing well following surgery, chemotherapy and radiation therapy. While many would visit Jay during his frequent hospital stays at the American Family Children’s Hospital, one rather tall fellow made quite an impression on Jay—UW Badgers Head Football Coach Bret Bielema. “I just walked into a big smile and it never left,” Bielema says about his first visit to Jay’s hospital room. Since then, Jay and Bret have developed a special bond. For weeks, Jay kept a photo from Bret’s visit next to his hospital bed. Bret, in turn, keeps a special place in his heart for Jay, asking the young Badger fan how his siblings are doing before the two pose for photos at Camp Randall Stadium. —Bret Bielema, UW Badgers Head Football Coach There was also the time when his UW Health pediatric oncologist, Diane Puccetti, MD, asked Jay if he wanted some company while they both ran the 5K Suzy Favor Hamilton Run/Walk for Capital Candlelighters, an organization that provides support for childhood cancer patients and families. “I thought it might be fun if we ran together, but he took off like a jackrabbit,” Puccetti says. “I remember seeing him way ahead of me only to turn around and yell, �Only a mile left!’” Like many hospitalized children, Jay inspires so many through his resiliency and thoughtfulness. “Kids don’t know that they’re supposed to feel bad,” says Joel. “Jay tells me so many times, �Dad, a lot of kids have it worse than I do.’” Patients get front row seat for the Badgers Nothing puts a smile on a hospitalized child’s face quite like attending a Big Ten football game. Thanks to the “Bucky’s Locker Room Patio” program launched in 2006 by the UW Athletic Department, nine American Family Children’s Hospital patients and families are allowed to attend each Wisconsin Badgers home football game at Camp Randall Stadium. “It is very heartwarming,” says Senior Associate Athletic Director Vince Sweeney, who has received many letters and e-mails from grateful patients and families who have participated. Kaylin Schoen, 8, of Neenah agrees and could not have been more thrilled to bring her mom, Monica, to a game in September 2007. “It was phenomenal,” says Monica. “We just loved it. Kaylin still talks about it all the time.” 9 Samantha Ceplina 10 Bound and determined Muscle disease no obstacle to Samantha S amantha Ceplina has had her heart set on a career in healthcare ever since childhood. Samantha’s mother, Kristine Ceplina, remembers how relieved she was once Samantha was finally diagnosed after years of uncertainty. “First I wanted to be a doctor, then it was a surgeon, then a pathologist,” says the 19-year-old Stevens Point native who is now a sophomore at picturesque Edgewood College in Madison. “Samantha crawled and walked a bit late and she never ran very much, but it took until she was six before she was diagnosed with SMA at UW Children’s Hospital. Once we knew, it was a lot easier for all of us to move on. We never treated Samantha any differently, and never told her there was anything she couldn’t do.” With some help from her mother, Kristine, Samantha discovered what appears to be the perfect field: cytotechnology—the microscopic study of cells for evidence of disease. “I want to work in a hospital lab,” Samantha says. “Edgewood College has a great program in this field, and I just love it here.” With Grandma and Grandpa (Michele and Donald Last) living near campus, Samantha is thankful for the many warm meals, rides and laundry service. A strikingly beautiful, good-humored, and determined young woman, Samantha could have easily viewed her life as the proverbial halfempty glass. Diagnosed at age 6 with spinal muscular atrophy (SMA), Samantha has not been able to walk for the past six years. Of course, she has no time for what others might view as obstacles. “SMA is something I have,” she says, “but I have never let it define me. It has never changed what I have wanted to do.” Deborah McLeish, MD, a UW Health pediatric specialist in neuromuscular diseases, has treated Samantha for the past 13 years. “Samantha’s form of SMA—Type 3—is the least aggressive form of the disease,” says McLeish. “It results in a weakening of muscles— usually affecting the legs more than the arms, but can affect the breathing muscles as well.” “SMA is something I have, but I have never let it define me. It has never changed what I have wanted to do.” —Samantha Ceplina The older sister of Colton, 17, and twins Tad and Emma, 13, Samantha was a high school senior when she met a young marine on the Internet named Chris Przybylski—also from Stevens Point. “We never knew each other from home,” Samantha says. “He was a little older and went to another high school. He added me as a �friend’ on his myspace.com page and soon we started going out.” On Christmas Eve 2006, Chris proposed to Samantha and she said yes. While they both plan to finish school before getting married (Chris, 22, is now in the Police Science program at Madison Area Technical College), both are very excited about their future together. “Chris is very good to her,” says Kristine. “He will make her very happy.” Pediatric specialty care from A to Z Fortunately, most patients who come to the American Family Children’s Hospital never spend the night. More than 30,000 patient appointments occur each year in the Pediatric Specialty Clinics located on Level 2. From cardiology to cancer, pediatric specialists and staff see children in this beautiful space that features 35 exam rooms, two spacious waiting areas, teaching space, special procedure rooms, radiology and rehabilitation areas. In September 2007, this space was named the George A. Fait Family Pediatric Specialty Clinics in honor of a $3 million gift from Mr. Fait, a retired insurance company president from Middleton. “Contributing to this world-class children’s hospital is both an honor and a privilege,” says Mr. Fait. “The new facility will be a beneficial legacy to all of the children and families that pass through its doors.” 11 A children’s hospital like no other serving patients and families from wisconsin and beyond 12 13 Opening the Gift in 2007! After years of dreaming, planning, fundraising and building, the American Family Children’s Hospital finally opened its doors in 2007. A four-day grand opening weekend of festivities in late July—including a formal dedication—was followed by the actual patient move and clinic opening in late August. More than 8,600 people attended at least one of the grand opening events, with everyone marveling at the new hospital. From the pure fun of the Main Lobby “Town Square,” to the twice-as-big inpatient rooms, to the soothing colors that emanate from every wall and floor, this is one place any family would want to be if their child is hospitalized. “I have seen many grand openings in Madison, but I have never seen so many jaws drop,” says John Flad, chair of the American Family Children’s Hospital Advisory Board and president of Flad Development Corporation. “We all know that the quality of care was never in question at the old UW Children’s Hospital, but the rooms were quite small and the place was looking very tired. “With so many worthwhile causes in this community,” Flad says, “I am so proud of what we accomplished here for hospitalized kids and their families. Whether you are a parent or grandparent, your child may need this hospital at the drop of a hat. Now, if it ever happens, your family will be in one of the nation’s very finest children’s hospitals.” 14 Pediatric surgeon-in-chief Dennis Lund, MD, speaks at the July 29, 2007 dedication of the American Family Children’s Hospital. Wisconsin Governor Jim Doyle (far right) and Congresswoman Tammy Baldwin of Madison (holding US flag) were also among the public dignitaries in attendance. 15 2007 Community Events and this is just a sampling! Left to Right: Gear Up For Kids bicycle ride June 9, 2007 NFL Alumni Madison Chapter Crazylegs Classic July 30, 2007 Tour de Touchdown November 14, 2007 The American Family Children’s Hospital is proud to partner with scores of Wisconsin schools, community organizations, businesses and individuals. Left to Right: Wisconsin Singers Concert April 27, 2007 Champions for Children Fall 2007 Everyone’s Got Change Fall 2007 Each of these generous partners raise funds that support the needs of our patients and families. 16 Donors & Gifts 17 Donors and Gifts The American Family Children’s Hospital would like to thank all donors who help us care for patients and their families. Whether a gift supports our programs or our brand new building, every dollar means a lot when it comes to providing world-class care to children in a close-to-home setting. Donors listed on the following pages have made a gift of at least $100 during the period between October 1, 2006 and September 30, 2007. We apologize in advance if there are any errors in this list. If your name is incorrect or missing, please contact Kay Burns at (608) 265-6433 or kay.burns@uwfoundation.wisc.edu. The American Family Children’s Hospital Development Team works closely with many of our generous donors. 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Callahan Tad Callahan Carlotta Calmese Calument County Professional Law Enforcement Cambria-Friesland FCCLA Andrew M. Campbell Emily Campbell Kelli Campbell Paul Campbell Capitol Bank Adam Cappelle Caps for the Cure Lisa Carlsen Breeannon Carlson Mitch Carlson Nona Carpenter Uriah A. and Jeanne M. Carpenter Sara Carrick Michelle Carter Jessica Caruso Chad and Kristin Casey Dana Casey Erin Cassada Melanie and Emma Catron Candice Cattell Margaret Cedar John Centanni Judy Chaffin Jamie Chambers Kathy Chambers Tammy Champagne Rebecca Chance Jennifer Chapiewsky Jamie Chapman Mary E. Chapman Stephanie Chapman Catherine Chappell 2007 Leadership Carl J. Getto, MD Interim President and CEO UW Hospital and Clinics and American Family Children’s Hospital DONNA KATEN-BAHENSKY Incoming President and CEO (Effective February 2008) UW Hospital and Clinics and American Family Children’s Hospital Margaret M. Van Bree, MHA, DrPH Sr. Vice President and Chief Operating Officer UW Hospital and Clinics and American Family Children’s Hospital Ellen Wald, MD Chair, Department of Pediatrics UW School of Medicine and Public Health Pediatrician-in-Chief, American Family Children’s Hospital Jennifer Brazelton Interim Vice President American Family Children’s Hospital Jeff poltawsky Incoming Vice President (Effective January 2008) American Family Children’s Hospital Mary Kaminski Director of Patient and Family Services Nancy Schryer, RN, MSN Director of Pediatric Nursing and Clinical Services Tom Young Community Relations Manager Nancy Francisco-Welke Director of Development UW Foundation Jim Gilmore Development Program Manager UW Hospital and Clinics Christopher G. Green, MD Professor and Vice Chair, Department of Pediatrics UW School of Medicine and Public Health Kristine Thompson Development Project Director, UW Hospital and Clinics Consultant Medical Director, American Family Children’s Hospital Beth Blum Director of Annual Giving UW Hospital and Clinics Dennis P. Lund, MD Professor of Surgery and Chairman, Division of General Surgery UW School of Medicine and Public Health Surgeon-in-Chief, American Family Children’s Hospital Advisory Board John Flad, Chair Patrick Boyle Maury Cotter Lea Culver Nancy Dohm Rick Fetherston Thomas Grantham Lydie Hudson Robert Landsee Jennifer Moluf Boo Mortenson George Nelson Harvey Pierce Jack Salzwedel Bob Schlicht Sylvia Vaccaro David Walsh Julie Zimbrick 19 Chartwell Wisconsin Jeffrey Chase Gabriel Chayer Jen Check Kay Cherek-Halder Kyle Cherry Katelyn Chesick Connie Chesnik Kelly Chesnik Laura Chierici Brooke Childs Kaye Chipman Tina Chirafisi Ryan Chmiel Steve H. J. and Lisa Y. 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Zweber Stephanie Zweifel Chris Zwettler Joe and Jan Zwettler Credits 28 Edi to r Michael Felber UW Health Marketing and Public Affairs Photo g ra phy David Nevala Photography Pages: Cover, inside front cover, 2-7 and 10-11 Gra phic D e si gn Christine Klann UW Health Marketing and Public Affairs C&N Photography Pages: 8-9, Jay Haraldson and 12-13 Todd Brown, Media Solutions, UW-Madison Pages: 3, Michael Kim; 14-15; 16, Tour De Touchdown and 18-27 Ph o to g ra phy Stephen Funk: Page: 16, Gear Up for Kids Michael Lemberger Pages: 1 and 16, Everyone’s Got Change David Stluka Photography Page: 9, Bucky’s Locker Room Mo re In formation For patient services at the American Family Children’s Hospital, please call (608) 890-8000 or visit uwhealth.org/kids. For information on contributions, please visit nofinergift.org or call (608) 263-8178. Cop yright © 2008 University of Wisconsin Hospital and Clinics Authority 600 Highland Avenue Madison, WI 53792
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